Table 2 Prioritization of information needs

Medication information

17

[16, 17, 36, 37, 39, 51, 52, 55, 65, 66, 68, 72,73,74, 76,77,78]

Diet and nutrition

13

[18, 36, 37, 39, 52, 55, 66, 68, 69, 72, 76,77,78]

Generalities about the disease

9

[16,17,18, 37, 51, 52, 69, 72, 74]

Coping with IBD

6

[17, 39, 51, 52, 55, 77]

Disease complications

6

[39, 48, 59, 66, 69, 76]

Prognosis/ Risk of cancer

6

[18, 36, 48, 72, 73, 77]

Common symptoms /

Extraintestinal manifestation

6

[48, 68, 69, 73, 74, 78]

Etiological and mechanism

3

[36, 48, 76]

Surgery

2

[65, 73]

Test and diagnosis

2

[37, 55]

Alternative treatments

2

[55, 74]