Table 1 Overview of adaptations by card and step

1

To be free of pain

Not being in pain*

2

Not being short of breath

Not being short of breath*

3

To be kept clean

Being neat and clean

Being neat and tidy

4

To be free of anxiety

Not being afraid^C

5

To have human touch

Having physical contact^C

6

To have my family prepared for my death

That my family is prepared for my death*

7

To die at home

Dying at home*

8

To say goodbye to important people in my life

Being able to say goodbye to my loved ones

9

To remember personal accomplishments

Sharing my memories with others

Being able to share my memories and accomplishments with others

10

To take care of unfinished business with family and friends

Being able to take care of unfinished business with family and friends*

11

To be treated the way I want

Being treated the way I would want to be treated*

Being treated the way I wish to be treated

12

To maintain my dignity

Keeping my dignity*

13

To keep my sense of humour

Keeping my sense of humor*

14

To have close friends near

Being surrounded by good friends*

15

To have someone who will listen to me

Having someone who listens to me*

16

Not being a burden to my family

Not being a burden to my family*

17

To be able to help others

Being able to mean something for someone else

Being able to do something for someone else

18

To be able to talk about what scares me

Being able to talk about what scares me*

19

To have my family with me

Being surrounded by my family*

20

To feel that my life is complete

Feeling that my life is complete*

21

To have a doctor who knows me as a whole person

That the doctor sees me as a whole person*

22

Not dying alone

Not dying alone*

23

To be mentally aware

Be clear-headed^C

24

To pray

Being able to pray*

25

To meet with clergy or a chaplain

Having a philosophical counsellor

Having a spiritual counselor as support

26

To be able to talk about what death means

Being able to talk about death*

27

To be at peace with God

Be at peace with god

Be at peace with God

28

To have my financial affairs in order

Getting my financial affairs in order*

29

To know how my body will change

Knowing how my body will change*

Knowing how my body and mind will change

30

To prevent arguments by making sure my family knows what I want

Avoid discussions by ensuring my family knows what I want^C

31

To have an advocate who knows my values and priorities

Having someone to represent my values and priorities

Having someone to speak up for what I think is important

32

To trust my doctor

Being able to trust my doctor*

33

To have a nurse I feel comfortable with

Having a healthcare professional I feel comfortable with

34

To have my funeral arrangements made

Arrange my burial in advance

Arrange my funeral in advance

35

Not being connected to machines

Not being dependent on machines*

Not being dependent on machines to keep me alive

36

A self-chosen end of life^A

Being able to choose when and how I die^A

37

Being able to record my choices^A

38

Wild Card

Joker

39

Joker^A,B