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Table 2 Barriers of PCC for immigrants and refugees

From: Barriers and facilitators of patient centered care for immigrant and refugee women: a scoping review

Level

Articulated by (occurrences across included studies if > 1)

Patient

Clinician

Both

Patient

All patients

• Feel vulnerable when they need help

• Reluctant to “bother” nurse to ask for help

Women patients

none

All patients

• Culture influences expectations of healthcare provider or system and views about illness, i.e. shame about condition (4)

• Acceptance of procedures or treatment/adherence (4)

• Diversity of cultures/languages requiring some familiarity

• Lack of familiarity with healthcare system

Women patients

• Little knowledge about disease processes

• Little knowledge about female anatomy, menstrual cycle, reproduction, contraceptives

• Culture/religion influences contraceptive decisions, leading to unplanned pregnancy/abortion

• Fear of violence if families learn about contraceptive use, pregnancy or abortion

All patients

• Language (5)

Women patients

• Decisions made by family rather than the individual woman (2)

• Economic constraints or lack of health insurance (2)

• Lack of trust in health care system; sometimes due to past negative experience (2)

Clinician

All patients

• Busy and rushed, so little communication (2)

• Delayed diagnosis (2)

• Treated like a lab rat rather than a person; wanted clinicians to get to know them, listen, care, help them understand

• Judgmental behavior or tone

• Treated differently due to culture, race, gender

Women patients

• Ignored/dismissed concerns

• Provided little information about possible complications or about actual adverse outcomes

• Disrespectful behavior or disparaging remarks

All patients

• Lack of training in cultural competency or how culture influences communication or health (seeking) behavior (4)

• How to achieve cultural competency without stereotyping (2)

• How to deliver care while accommodating culture (2)

• Unaccustomed to managing certain diseases/health care issues (i.e. trauma, mental health, tuberculosis)

• Anxiety due to lack of knowledge or experience with migrants

• Burnout

• Perceived that patients wanted doctor to lead the conversation

Women patients

none

All patients

• Consultations require longer time due to language, culture, knowledge barriers; relationships took longer to establish (5)

Women patients

• Lack of knowledge about culture/religion

Organization or system

All patients

• Red tape/paperwork

• System difficult to navigate

Women patients

none

All patients

• Lack of language services; reliance on family (2)

• Interpreters are time-consuming and inaccurate (2)

• Using family interpreters raises privacy and ethics issues (2)

• Remuneration insufficient for time required (2)

• Lack of support/community services

• Western healthcare model inflexible

Women patients

• No protocols or guidelines to help care for migrant women

All patients

none

Women patients

none