Table 1 Semi-structured interview guide
Set | Principal questions |
|---|---|
Experiences with the disease (from patients who consciously experienced their diagnosis) | Please remember the beginning of your disease. What changes did you notice? |
How did diagnosis proceed? | |
What happened after diagnosis? | |
When imagining yourself in that position again, how did you feel? | |
Experiences with the disease (from patients who did not consciously experience their diagnosis) | Please tell me about your disease and how life has changed due to it. |
How does your disease affect your everyday life? | |
Some people want to learn more about the diseases that they live with. How about you? | |
Information seeking and information needs | How was that, striving to find information about your disease? |
Do you remember any events that you associate with increased demand for information? | |
Please tell me about situations in which it was easy to gather information. | |
Please tell me about situations in which it was difficult to gather information. | |
Which moments do you consider important in searching for information? | |
Type of access | Please imagine the many possibilities of modern and classic media to communicate. Please recall your own situation. Which media did you use when searching for information? |
Which medium would you prefer for accessing information? | |
Completion | Are there any other topics that you would like to talk about? |