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Table 1 Stressors of caregivers classified based on the socio-ecological framework

From: Burden of caregivers of children with cerebral palsy: an intersectional analysis of gender, poverty, stigma, and public policy

 

Dimensions of the Socio-ecological framework

Individual stressors

Interpersonal stressors

Community stressors

Environmental stressors

Health system and policy stressors

Physical

The burden of work and lack of rest

Physical aches and pains

Abusive husband, lack of physical support

Inability to give good care for other children

No physical support from community members

Physical accessibility barriers

Difficulty in public transport facilities

 

Emotional

Guilt, blame, worry regarding the future of the child with a disability

Emotional abuse by spouse

The guilt of not being able to care for other children

Sense of isolation in society

Worried about how to get around with the child

 

Social

Blame by society on the parents

Blame by the society that she is not caring for the family

Discrimination in society

Non-inclusive spaces

Lack of social support groups

Financial

Unable to work, the financial burden borne by the individual

  

Lack of job options that help the caregivers have flexible hours

Disability welfare support insufficient

Informational

Lack of knowledge about caregiving options

   

Lack of support groups and information