Facilitators | ||
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Family | • “My family, especially my daughters, help me make health decisions. If they tell me that I need to do this medicine, I will do it.” | • “Hispanics have large extended families and that before to make decisions, we ask our sisters, mothers, even our friends before we make any health decision.” |
Information in Spanish | • “The majority of Hispanics living here do not speak English at all, so if the information [about PM] is in our language, it may help us understand because it is in Spanish.” | • “I think that the doctor who speaks the same language I speak [Spanish] can help me understand. If the doctor speaks English I would not get a [genetic] test.” |
Plain Language and Graphics | • “When [PM] information is distributed in pamphlets, it should not have to many written words. It should have drawings so that everyone can understand. For example, I only finish elementary school …” | • “Most of the time, the information about new things like this medicine is not given in a way that people can understand. Then little by little [doctors] can explain to us what diseases [PM] could treat and cure.” |
Assistance Programs for Uninsured | • “I think that free programs that can offer free genetic testing would be good for those who do not have health insurance.” | • “I do not go to visit the doctor becasuse I do not have health insurance. I wonder who will help me to go to the doctor to get a genetic test. Who will help me if I need to go back to the doctor again?” |
Trust in Doctors and Healthcare staff | • “… doctors are accredited and have all the support they need for this type of medicine, so patients can say ok …” • “… a doctor studied medicine and in [his/her] office [he/she] has a diploma. That makes me more confident.” • “If the doctor tells me that I have a chronic disease and need to use PM, I will use it.” | • “Nurses who work with doctors study to work in a hospital, and they have to be good to help doctors. I trust them.” “… since this medicine’s focus is precision, I trust a doctor because [he/she] looks into each case, each patient.” |
Trust in Well-known Hospitals | • “I feel good when I get health information at the hospital because it is the place where I get healthcare.” • “… but that information must be in Spanish though.” | • “I would trust more if it comes from a hospital because there, there is the appropriate equipment. I fully trust if the [PM information] comes from a hospital.” |
Trust in Academic Institutions | • “If universities like Vanderbilt will keep genetic information, I can trust my information … they do not give our medical information to the government” | • “I heard that universities do not do research unless one gives them permission. I guess it would be the same with precision medicine.” |
Source of Information: Healthcare Provider | • “… a doctor can give accurate information, so that people can express real interest, that is why they are professional.” | • “I would not trust anyone but doctors because they can explain to us very well that it is to detect a disease in my blood.” |
Source of Information: Community Organizations | • “.. the best way to teach or explain to people about [precision] medicine it would be through foundations, hospitals, churches, even at schools could be explained how this medicine works and how will benefit people.” | • “I think that if a place like this [community center] offers presentations, forums, workshops, and other things, people can understand better what precision medicine is.” |
Personal Motivation | • “It would be up to each person’s interest. If someone has the interest in being cured, [he/she] will use precision medicine.” | • “Anyway, persons who are already sick will use the service [precision medicine]. I think that if a person feels healthy will not.” |
Altruism (societal benefit) | • “Yes, I would participate in [precision medicine] because [it] would help to act fast to treat a disease to help others in the future” | • “.. if the doctor asks me to provide my genetic information for future researches, I believe that like human beings, [we] have to accept the [genetic] test because it is for the benefit of the advance of medicine for other people …” |