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Table 1 Demographic and clinical characteristics of the sample

From: The Caregiving Health Engagement Scale (CHE-s): development and initial validation of a new questionnaire for measuring family caregiver engagement in healthcare

Demographic variables (caregivers) Stage 1
(N = 32)
% (N)
 Stage 2
(N = 198)
% (N)
Mean age (s.d.) 62.9 (6.2) 53.3 (12.5)
Gender (% females) 58 (19) 76.5 (151)
Relationship with the patient (%)
 Parent 3.1 (1) 56.1 (111)
 Son/daughter 12.5 (4) 13.6 (27)
 Spouse/partner 84.4 (27) 24.7 (49)
 Other  5.6 (11)
Clinical variables (patient)
 Mean years from diagnosis (s.d.) 4.9 (5.3) 11.4 (8.7)
Patient’s main disease (%)
 Pulmonary disease 21.9 (7) 38.4 (76)
 Alzheimer’s disease 3.1 (1) 9.1 (18)
 Diabetes 34.4 (11) 7.1 (14)
 Cystic fibrosis  7.1 (14)
 Cardiovascular disease 28.0 (9) 4.5 (9)
 Rheumatoid arthritis  5.1 (10)
 Cancer 6.3 (2) 4.5 (9)
 Dementia 6.3 (2) 3.5 (7)
 Connective tissue disease  2.5 (5)
 Multiple sclerosis  1.5 (3)
 Vasculitis  1.5 (3)
 Other (various)  15.2 (30)