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Table 1 People with activity limitations’ perceptions of their health condition, their social participation and experienced autonomy; descriptive statistics

From: People with activity limitations’ perceptions of their health condition and their relationships with social participation and experienced autonomy

Perceptions of the health conditionNMSD
 Identity14 common symptoms, occurrence and relation to their health condition. Higher scores indicate a belief that more symptoms relate to the condition (range 0–14).15265.22.7
 Timeline acute/chronic6 items, e.g. “My condition is likely to be permanent rather than temporary”. Higher scores indicate a belief in a more chronic timeline (range 1–5).16414.50.6
 Timeline cyclical4 items, e.g. “My condition is very unpredictable”. Higher scores indicate a belief in a more cyclical timeline (unpredictability) (range 1–5).16293.20.9
 Consequences6 items, e.g. “My condition has major consequences on my life”. Higher scores indicate a perception of more serious consequences (range 1–5).16423.60.8
 Personal control6 items, e.g. “I have the power to influence my condition”. Higher scores indicate a perception of more personal control (range 1–5).16392.90.8
 Treatment control5 items, e.g. “There is nothing which can help my condition”. Higher scores indicate a perception of more control by means of medical treatment (range 1–5).16292.60.7
 Coherence5 items, e.g. “My condition doesn’t make any sense to me”. Higher scores indicate a better perceived understanding of the condition (range 1–5).16263.70.8
 Emotional representations6 items, e.g. “When I think about my condition I get upset”. Higher scores indicate a greater perceived impact on the emotional state (range 1–5).16342.70.9
Social participationN% 
 Doing volunteer work1 item, “Do you perform volunteer services? (e.g. for a sports club, church, school, political party)?”159226 
 Performing club activities weekly1 item, “How often do you participate in the following club activities: (1) sports in a club, (2) dance/music/drama/hobby club?”158231 
 Meeting friends weekly1 item, “How often do you meet friends or good acquaintances? (we mean meetings with people who do not live in your house and with whom you have at least a short conversation, not just a greeting)”160638 
AutonomyNmeanSD
 Autonomy outdoors5 items, e.g. “My chances of using leisure time the way I want to are …” (very good to very poor; range 0–4)16561.80.8
 Autonomy in social life and relationships7 items, e.g. “The quality of my relationships with people who are close to me are …” (very good to very poor; range 0–4)16251.30.6