Table 2 quotes of the participants
nr | patient | Quote |
|---|---|---|
Perceived susceptibility and severity | ||
1 | 7 | “I never heard of NPC before […] even my doctor was surprised […] I was just shocked”. |
2 | 2 | Statement by daughter of this patient: “Personally, I have no idea what causes the disease…before, my father ever had a ruptured blood vessel.” |
3 | 11 | “I’m afraid of cancer…..I am afraid that I would die.” |
4 | 12 | “even though I have this illness but I don’t consider myself to have this illness, just like normal. |
5 | 8 | “I totally changed my lifestyle. I totally quit smoking and I also eat vegetable, it feels good”. |
6 | 4 | “if I would not have waited, but went straight to the dr. Sardjito hospital, I would still be like this” |
7 | 6 | “At first, I had a headache, I was dizzy and all the bones in my left side from the bottom are painful; then my son told me to go check it in the hospital”. |
8 | 5 | “I had a small mass in my neck, more than one year ago, then I had a biopsy. But the mass came back five months ago. During the time I regularly had blood in my sputum and a headache, but I did not think that was serious.” |
9 | 9 | “I had a ringing sound in one of my ears. After a while I went to the doctor, but he said that I was fine, so I thought it was just flu. But then I had a terrible headache and I had a mass in my neck. The mass really felt abnormal, so I went to the doctor again.” |
Perceived benefits and barriers | ||
10 | 9 | “According to the theory I would get cured […] the chemo would make the illness less and the radiotherapy would eliminate it”. |
11 | 8 | “I was diagnosed with a bronchitis […] after several months the lumps in my neck appeared”. |
12 | 1 | “I got a tonsil operation, I thought I would be cured, but I still had a headache […] I went to eleven different doctors before I got to the Ear Nose Throat doctor […] now we only have to wait for the chemotherapy”. |
13 | 11 | “For registration I had to wait for one to two hours…… after I got the schedule for radiotherapy, I wanted the internist to tell about the schedule…. I had to queue from the beginning again” |
14 | 9 | “I would like to pay no matter what, my son told me not to use BPJS they would treat us like less important”. |
15 | 3 | “There was a patient from Banyumas; she had a blackened face, I’m only afraid I will get that too when I start radiotherapy”. |
Cues to action | ||
16 | 8 | “My suggestion is there should be posters in the street so they know about the danger of smoking […] I often see young kids on the street smoking, only thing I can do is tell them about the risk of getting cancer, because I already have the experience”. |
17 | 7 | “I went for 8 times to dr. Sardjito hospital […] until all papers were complete. I was there until I fainted […] we had to go there and there”. |
18 | 8 | “The queue for the registration is very long […] this is an obstacle; this should be easier”. |
19 | 3 | “About the costs, it is hard […] but the cost to go there by bus is too much […] For the treatment we now use BPJS, the insurance before only gave us a discount, but now we do not have to pay for the treatment”. |
Culture and religion | ||
20 | 10 | “My health was decreasing, so my family and kids quickly decided to get medical treatment […] We would do everything to be able to pay for it […] it was money from the family”. |
21 | 2 | “We didn’t tell my father about his disease… we are afraid that he will get stressed [..] He knows that he is sick”. |
22 | 2 | “I don’t know the names of all the herbs; knowledge is inherited from previous generations, my grandparents […] I’m using alternative treatment because I just want to be cured. Besides that, it is more affordable”. |
23 | 10 | I do want to know more clearly, well, because I am only a patient so I keep quiet […] maybe if I asked something, the doctor would be offended. |
24 | 7 | “If God allows I will be cured” |
25 | 10 | “I am not afraid, the most important thing is that I totally surrender to have this illness, hope God will take it away”. |