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Table 4 Study measures, data source, and timing

From: Activation of persons living with HIV for treatment, the great study

Construct (Hypothesis)

Measure

Data type source

Collection points

Participant characteristics

   

 Demographics

Standardized questions

Survey

T0

 Computer experience

Standardized questions

Survey

T0

 Health history

Standardized questions

Survey

T0

Aim 1 (Empowerment)

   

 Patient activation (H1.1)

PAM [56, 57]

Scale

T0, T1, T2

 Decision making (H1.1)

Decision Self Efficacy Scale [26]

Scale

T0, T1, T2

 eHealth Literacy (H1.1)

eHEALS [23, 24]

Scale

T0, T1, T2

 Involvement in Care (H1.2)

Perceived Involvement in Care [25]

Scale

T0, T1, T2

Aim 2 (Evidence-based care)

   

 HIV adherence self-efficacy (H2.1)

ASES [29]

Survey

T0, T1, T2

 Adherence to cART (H2.1)

Past week adherence [28]

Survey

T0, T1, T2

 HIV viral load <50 (H2.2)

HIV viral loads (both actual level; and whether undetectable or not)

Chart abstraction

T0, T2

 Evidenced based preventive care

Cancer screening/immunizations [58]

Chart abstraction

T0, T3

Aim 3 (Health)

   

 Physical and Mental health/Quality of Life (H3.1)

SF-12 [27]

Scale

T0, T1, T2

Aim 4 (Moderators)

   

 Low Activation (H4.1)

PAM and eHEALS (<median)

Scales

T0

 Minority race/ethnicity (H4.2)

Standardized questions

Survey

T0

 Low education (4.2)

Standardized questions

Survey

T0

 Clinician patient centeredness

Instrument on Doctor-Patient Communication Skills. [30]

Scale

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