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Table 1 List of key themes and sub-themes

From: The care.data consensus? A qualitative analysis of opinions expressed on Twitter

Key themes Sub-themes
1 Informed consent and the default ‘opt-in’ 1 Opt-out versus opt-in
2 Informed consent
3 Patient access to GP records
4 Apathy regarding default ‘opt-in’
2 Trust 5 Lack of trust
3 Privacy and data security 6 Identifiable data
7 Privacy
8 Security issues
9 Confidentiality of patient data
10 care.data has risks
4 Involvement of private companies 11 Data accessed by insurance companies
12 Data for sale
13 Concerns about the involvement of a private IT company
14 Data going to other private companies
15 Care.data linked to NHS privatisation
5 Legal issues and GPs’ concerns 16 Data protection
17 Legal issues
18 GPs' concerns
19 Concerns about adding genomic data later
20 Police access to care.data
6 Communication failure and confusion about care.data 21 Communication failure
22 Confusion about what care.data is
23 care.data as a media event
24 care.data leaflet and junk mail
25 Conflicts of interest
26 Public ignorance about care.data
27 Mainstream media reports on care.data
28 PR and presentation of facts
29 Critics accused of scaremongering
7 Delayed implementation 30 Delay to implementation
31 Role of activists or activism
32 Flawed project
33 Change management
34 Another NHS fiasco
35 Pause will not affect implementation
36 A failed brand
37 Costs of care.data project
38 Technological problems
39 Accuracy of medical records
8 Patient-centeredness 40 Arrogance
41 Lack of patient and public involvement
42 Lack of patient-centeredness
43 Patient ownership of medical data
44 Lack of engagement
9 Potential of care.data and the ideal model of implementation 45 Pro care.data viewpoint
46 Ideal model of implementation
47 Benefits of open data
48 Accusing critics of scaremongering
49 Use of patient data is not new
50 Moral imperative for care.data