Table 1 Measures and time of assessment in the young & strong study
Measure | Assessed by | Time of assessment |
|---|---|---|
Attention to fertility | Â | Â |
|  | • Medical Record Review | 3- and 6-mo |
|  | • Fertility Issues Survey [35] | 3-, 6- and 12-mo |
Anxiety, depression, and distress | Â | Â |
|  | • Hospital Anxiety and Depression Scale (HADS) [37] | BL, 3- and 12-mo |
|  | • Center for Epidemiologic Studies Depression Scale (CES-D) [39] | BL, 3- and 12-mo |
|  | • Perceived Stress Scale (PSS) [40] | BL, 3- and 12-mo |
Health-related quality of life | Â | Â |
|  | • Cancer Rehabilitation Evaluation System-SF (CARES-SF) [41,42] | 3- and 12-mo |
Contraception | Â | Â |
|  | • Items used in prior work assessing methods of contraceptive use among young women with breast cancer at diagnosis and over time [36]. | 3- and 12-mo |
Satisfaction with care | Â | Â |
|  | • Short-Form Patient Satisfaction Questionnaire (PSQ-18) [43] | 3-mo |
Physical activity | Â | Â |
|  | • Godin Leisure Time Physical Activity Questionnaire [44,45] | BL, 3-, 6- and 12-mo |
|  | • Nurse’s Health Study Physical Activity Question Index [46] | BL, 12-mo |
Intervention engagement | Â | Â |
|  | • Items used in prior work to gauge use of intervention materials [49] | 3-mo |
Socio-demographics | Â | Â |
|  | • United States Department of Health and Human Services Breast Cancer Core Questionnaire to assess age ethnicity, education, marital status, employment status [47,48] | BL |
• Participants’ perceived financial status of their household | ||
• Ashkenazi ancestry |