Skip to main content

Table 1 Measures and time of assessment in the young & strong study

From: Study protocol for Young & Strong: a cluster randomized design to increase attention to unique issues faced by young women with newly diagnosed breast cancer

Measure Assessed by Time of assessment
Attention to fertility   
  • Medical Record Review 3- and 6-mo
  • Fertility Issues Survey [35] 3-, 6- and 12-mo
Anxiety, depression, and distress   
  • Hospital Anxiety and Depression Scale (HADS) [37] BL, 3- and 12-mo
  • Center for Epidemiologic Studies Depression Scale (CES-D) [39] BL, 3- and 12-mo
  • Perceived Stress Scale (PSS) [40] BL, 3- and 12-mo
Health-related quality of life   
  • Cancer Rehabilitation Evaluation System-SF (CARES-SF) [41,42] 3- and 12-mo
Contraception   
  • Items used in prior work assessing methods of contraceptive use among young women with breast cancer at diagnosis and over time [36]. 3- and 12-mo
Satisfaction with care   
  • Short-Form Patient Satisfaction Questionnaire (PSQ-18) [43] 3-mo
Physical activity   
  • Godin Leisure Time Physical Activity Questionnaire [44,45] BL, 3-, 6- and 12-mo
  • Nurse’s Health Study Physical Activity Question Index [46] BL, 12-mo
Intervention engagement   
  • Items used in prior work to gauge use of intervention materials [49] 3-mo
Socio-demographics   
  • United States Department of Health and Human Services Breast Cancer Core Questionnaire to assess age ethnicity, education, marital status, employment status [47,48] BL
• Participants’ perceived financial status of their household
• Ashkenazi ancestry
  1. Note: BL = baseline.