Clinical evaluation study of the German network of disorders of sex development (DSD)/intersexuality: study design, description of the study population, and data quality

Table 1 Instruments used for different age groups. A detailed of the instruments is given in the additional file 1.

Instrument	Parents					Children		Adol.	Adults
Age (years)	0–0.5	0.5–3	4–7	8–12	13–16	4–7	8–12	13–16	>16
KINDL			X	X	X	X	X	X
SF-36									X
SDQ			X	X	X			X
BSI									X
CHC-SUN	X	X	X	X	X
CSQ-8									X
CODI								X
PSI		X	X	X	X
FKSI						X	X
BI-1								X	X
GII						X	X
UGDS								X
FGI									X
CBAQ			X	X
GRQ						X	X
Toy to keep						X	X
DSD-parents	X	X	X	X	X
DSD-adults									X
DSD-adolescents								X
Medical data	answered by attending physician

BI-1: Body Image Scale, BSI: Brief Symptom Inventory, CBAQ: Child Behavior and Attitudes Questionnaire, CHC-SUN: (Child Health Care – Satisfaction, Utilization and Needs, CODI: Coping questionnaire for children and adolescents, CSQ-8: Client satisfaction questionnaire, DSD: Disorder of Sex Development, FGI: Questionnaire of Gender Identity, FKSI: Frankfurt children's self-concept inventory, GRQ: Gender Role Questionnaire, GII: Gender Identity Interview, KINDL: Questionnaire for measuring health-related quality of life in children and adolescents, PSI: Parenting Stress Index, SDQ: Strengths and Health Questionnaire, SF-36: Health Survey, UGDS: Utrecht Gender Dysphoria Scale

ISSN: 1471-2458