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Table 1 Instruments used for different age groups. A detailed of the instruments is given in the additional file 1.

From: Clinical evaluation study of the German network of disorders of sex development (DSD)/intersexuality: study design, description of the study population, and data quality

Instrument Parents Children Adol. Adults
Age (years) 0–0.5 0.5–3 4–7 8–12 13–16 4–7 8–12 13–16 >16
KINDL    X X X X X X  
SF-36          X
SDQ    X X X    X  
BSI          X
CHC-SUN X X X X X     
CSQ-8          X
CODI         X  
PSI   X X X X     
FKSI       X X   
BI-1         X X
GII       X X   
UGDS         X  
FGI          X
CBAQ    X X      
GRQ       X X   
Toy to keep       X X   
DSD-parents X X X X X     
DSD-adults          X
DSD-adolescents         X  
Medical data answered by attending physician         
  1. BI-1: Body Image Scale, BSI: Brief Symptom Inventory, CBAQ: Child Behavior and Attitudes Questionnaire, CHC-SUN: (Child Health Care – Satisfaction, Utilization and Needs, CODI: Coping questionnaire for children and adolescents, CSQ-8: Client satisfaction questionnaire, DSD: Disorder of Sex Development, FGI: Questionnaire of Gender Identity, FKSI: Frankfurt children's self-concept inventory, GRQ: Gender Role Questionnaire, GII: Gender Identity Interview, KINDL: Questionnaire for measuring health-related quality of life in children and adolescents, PSI: Parenting Stress Index, SDQ: Strengths and Health Questionnaire, SF-36: Health Survey, UGDS: Utrecht Gender Dysphoria Scale
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