Table 1 Interview guides used for semi-structured interviews
Key Informants | Hepatitis B patients and community members | |
|---|---|---|
Current role background demographics | experience with regard to; | Role within family, community, work |
viral hepatitis | Social situation, children, partner | |
Indigenous health | Schooling – what age left | |
within East Arnhem land | Reason for clinic attendance today | |
Hepatitis B status - when first knew about Hepatitis B status | ||
Hepatitis B knowledge | own level of knowledge, where did this come from your perception of the general Indigenous populations knowledge | What do you understand by the phrase Hepatitis B infection |
Indigenous patients knowledge | If no knowledge move directly to communication section | |
what do you think are barriers to increased knowledge (e.g. language, cultural, knowledge systems, health beliefs) | What do you think it is/does, does it concern you | |
do you think increased knowledge will make a difference to patient adherence/outcomes, why, why not | How do you think you get Hepatitis B | |
Is it a problem for you or your family | ||
How did you learn about Hepatitis B | ||
Whose opinion, story do you most trust, why, how did this person talk to you | ||
What do you think about doctors/nurses/AHWs opinions/beliefs | ||
Communication | Are you involved in; testing patients, explaining results, counselling regarding treatment options, follow up, screening protocols | What is your experience of talking to doctors/nurses/midwifes /AHWs about your health in general/specifically Hepatitis B |
If yes to any of above what is your experience of this process with regard to communication, provision of education (is it easy, what do you find difficult about it, do you think it is done well, what do you think are the problems, how can we overcome them) any examples of real life situations with respect to any of these issues | How do you think this could be better | |
Do they use interpreters, how does this help you | ||
Do they use pictures/flipcharts/other tools to help you understand | ||
Which of these things do you prefer | ||
Do they help, why | ||
How would it help you if you understood more about your health/hepatitis B | ||
Available resources & ideas for educational tool | Have you used any resources to help with communication/health education, if so details | What kind of thing do you think would help you to understand better – flip chart/pictures/talking/electronic/tablet/phone based tool |
Do you use/need/have available interpreters | Look at these resources, are any of them attractive to you, which do you like, what do they say to you | |
Do you have an idea of what kind or resources might help | What are your thoughts about an ipad based resource | |
Please look at this collection of resources/images and tell me what you think about them, would they be helpful in this context, how could we use them in this context | What things do you want to know about | |
How do you feel about an electronic/tablet based resource, how would you see that working, advantages vs disadvantages | What about pictures | |
Are there any resources you like from different situations | What about language | |
What format do you think will work (electronic, flipchart, other) | What about interaction | |
Any ideas about what should be included | Will it help, why, why not | |
What about language, images, interactive or not |