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Table 2 Summary of main variables collected

From: Living with diabetes: rationale, study design and baseline characteristics for an Australian prospective cohort study

Section Examples of Variables Measures and Standardised Scales
A: Disease-related factors Type of diabetes and Disease duration
Glycaemic control, Treatment type, Diabetes Complications & Co-morbidity
Diabetes type verified using NDSS data
B: Health and Lifestyle Nutrition
Smoking status
Alcohol consumption
Physical activity
Height, Weight,
Sleep patterns (2010 only)
Dietary Guidelines for Australian Adults [29]
National Drug Strategy Household Survey [30]
Frequency-quantity measure# & National Health and Medical Research Council Guidelines [31].
Active Australia Survey [32] & National Physical Activity Guidelines for Australians [33]
Body Mass Index adapted from WHO [34]
C: Quality of Life Health related quality of life
Diabetes-specific quality of life
Euroqol EQ-5D [35]
Audit of Diabetes Dependant Quality of Life (ADDQoL) [36, 37]
D: Disease management Self-management
Compliance with providers recommendations
Disease management resources (2010 only)
Patient Activation Measure (PAM) [38]
Summary of Diabetes Self-Care Activities (Modified) [39]
Chronic Illness Resources Survey (CIRS) [40]
E: Health care utilisation Primary care visits
Allied health visits
Emergency department visits
Hospitalisations and reasons
 
F: Quality of care Patient-assessed quality of care
Satisfaction with care (access, coordination)
Practitioner compliance with guidelines
Patient Assessment of Chronic Illness Care (PACIC) [41]
Australian Diabetes Management in General Practice guidelines [42]
G: Emotional well-being Depressive symptomatology
Stressful life events
Optimism (2009, 2010)
Social Support (2009, 2010)
Centre for Epidemiological Studies: Depression Scale (CES-D) [43]
Life Orientation Test - Revised (LOT-R) [44]
ENRICHED Social Support Inventory (ESSI) [45]
H: Socio-demographics Age, Sex, Marital status, Ethnicity, Employment status, Educational status & Household income
Private health insurance; Health concession cards, Out of pocket health costs
Derived from Australia's National Health Survey questions [46]
  1. # The frequency-quantity method used to measure alcohol consumption in the LWDS is a relatively conservative estimate of high risk alcohol consumption [47]
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