Table 2 Measurement instruments

People with dementia

Socio-demographics

Dataheet

n/a

IC and MR

Comorbidity

Charlson index

n/a

MR

Cognition

MMSE

20 (0-30)

People with dementia

Behavior

NPI-Q

12 (0-36)

Proxy^†

ADL

KATZ

6 (0-6)

Proxy

Personal and social resources

RUD

n/a

Proxy

Quality of care indicators

Proxy

-nutritional status

Item on weight loss

1 (yes/no)

Proxy

-physical restraints

8 items from MAQ

n/a

Proxy

-pain

MDS based indicators. Presence, frequency, intensity and location.

n/a

Proxy

-pressure ulcer

Presence, intensity

n/a

Proxy

-mortality rate

Register mortality

n/a

Proxy

-mood disturbances/depression

CSDD

19 (0-38)

Proxy

-falls

Frequency and injuries recent falls

n/a

Proxy

Quality of Life

QoL-AD^‡

13 (13-52)

Self-and Proxy

Informal caregivers

Positive and negative aspects of caregiving

CRA

24 (5 dimensions)

IC

Caregivers burden

ZBI

22 (0-88)

IC

Availability of resources

RUD

n/a

IC

Psychological well-being

GHQ-12

12 (0-12)

IC

Quality of Life informal caregivers

EQ-5D

5 (n/a)

IC

Experiences on QoC

9 items of the CLINT

n/a

IC

open ended questions

n/a

IC

Economic evaluation

Resource use

RUD

n/a

IC and Proxy