Variable | Measure | No of items (range*) | Assessment |
---|---|---|---|
People with dementia | |||
Socio-demographics | Dataheet | n/a | IC and MR |
Comorbidity | Charlson index | n/a | MR |
Cognition | MMSE | 20 (0-30) | People with dementia |
Behavior | NPI-Q | 12 (0-36) | Proxy†|
ADL | KATZ | 6 (0-6) | Proxy |
Personal and social resources | RUD | n/a | Proxy |
Quality of care indicators | Â | Â | Proxy |
-nutritional status | Item on weight loss | 1 (yes/no) | Proxy |
-physical restraints | 8 items from MAQ | n/a | Proxy |
-pain | MDS based indicators. Presence, frequency, intensity and location. | n/a | Proxy |
-pressure ulcer | Presence, intensity | n/a | Proxy |
-mortality rate | Register mortality | n/a | Proxy |
-mood disturbances/depression | CSDD | 19 (0-38) | Proxy |
-falls | Frequency and injuries recent falls | n/a | Proxy |
Quality of Life | QoL-AD‡ | 13 (13-52) | Self-and Proxy |
Informal caregivers | Â | Â | Â |
Positive and negative aspects of caregiving | CRA | 24 (5 dimensions) | IC |
Caregivers burden | ZBI | 22 (0-88) | IC |
Availability of resources | RUD | n/a | IC |
Psychological well-being | GHQ-12 | 12 (0-12) | IC |
Quality of Life informal caregivers | EQ-5D | 5 (n/a) | IC |
Experiences on QoC | 9 items of the CLINT | n/a | IC |
 | open ended questions | n/a | IC |
Economic evaluation | Â | Â | Â |
Resource use | RUD | n/a | IC and Proxy |