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Table 3 Data collection

From: Study protocol of KLIMOP: a cohort study on the wellbeing of older cancer patients in Belgium and the Netherlands

Setting

 

Data collection

Interview

Ageing: CGA

 
 

Functional

Activities of Daily Living (ADL): Barthel index [41, 42]

  

Instrumental Activities of Daily Living (IADL): Lawton IADL scale [43]

  

Handgrip strength: Hydraulic Jamar hand-held dynamometer

 

Polypharmacy

 
 

Depression

15-item Geriatric Depression Scale (GDS-15) [44]

 

Cognition

Mini Mental State Examination [45]

 

Nutritional status

Participants will be asked whether they lost or gained weight in the past three months and how much 1

 

Social support

Questions considering the availability of a caregiver and professional care

  

The loneliness scale [46]

 

Ageing: Screening instruments

Abbreviated CGA (aCGA) [10, 47]

  

Vulnerable Elders Survey - 13 (VES-13) [11]

  

Groningen Frailty Index (GFI) [12]

  

G8 [13] which has been included in the EORTC minimal Dataset [14]

 

Quality of life

EORTC QLQ-C30 [48]

 

Distress

Distress Barometer (DB) [49]

 

Coping strategy

The Utrecht Coping List (UCL) [50]

 

Opinion on health and disease

Health Locus of control (HLoC) [51]

Medical record

Survival

Date of death

 

Comorbidity

Charlston Comorbidity Index [52] + additional diseases 2

 

Disease characteristics

Data of cancer diagnosis, TNM classification, type of cancer

 

Treatment characteristics

Type of treatment

  

Completion of therapy

  

Complications

  

Complaints (e.g. fatigue, pain)

  

Hospitalizations

 

Medication

 

Buccal swabs

Ageing: biological parameters

Telomere length

Baseline blood samples 3

 

CD4/CD8 T cell ratio, CMV status, B cell number, IL-6, TNF-α CRP etc.

Questionnaire caregivers

Socio-demographic information

 
 

Coping strategy of caregiver

The Utrecht Coping List (UCL) [50]

 

Caregivers distress

15-item Geriatric Depression scale (GDS15) [44]

  

12-item Zarit Burden Inventory (ZBI) [53]

  1. 1 We decided that the extra information given by the Mini Nutritional Assessment would not outweigh the burden of 18 extra questions, including circumferences of the calf and upper arm.
  2. 2 A limitation of the Charlston Comorbidity Index is that it does not take into account some disorders that might affect prognosis or evolution of quality of life in cancer patients. Therefore, some additional diseases will be registered as well (parkinsonism, blood transfusions, transplantations, thromboses, lung embolisms, a pacemaker, angina pectoris, a PCTA or a coronary bypass).
  3. 3 Only for cancer patients in Belgium
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BMC Public Health

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