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Table 2 Focus group guide

From: Impact of the COVID-19 pandemic on family carers of those with profound and multiple intellectual disabilities: perspectives from UK and Irish Non-Governmental Organisations

1. Can you tell me a bit about yourself and the people you care for?

2. Can you tell me what the pandemic was like for you and your clients?

Potential prompts: Can you tell me what life was like for you before, during and after the pandemic? Can you tell me a bit about how these changes made you feel?

3. Can you tell me what the most challenging aspects of the pandemic was for you?

Potential prompts: Can you tell me more about that? Can you give me an example of that?

4. Can you tell me what helped you and your clients cope during the pandemic?

Potential prompts: Can you tell me more about that? Can you give me an example of that? Have there been any particular resources that have helped?

5. We are hoping to create a support programme to help your clients, what do you think such a programme should contain?

Potential prompts: Why do you think this is? Can you explain more about this?

6. Where there any programmes or websites that you found helped?

7. What would an ideal programme look like to you?

8. How do you think such a programme should be delivered?

Potential prompts: Why do you think this is? Can you explain more about this?

9. Are there any topics that we haven’t covered today or that you would like to talk about before we finish the interview?