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Table 2 Thematic summary of findings

From: The hidden burden of medical testing: public views and experiences of COVID-19 testing as a social and ethical process

Theme

Sub-theme

Social and ethical considerations

Perceived benefits of testing

Creates knowledge of personal COVID-19 status

• Responsibility for one’s own health and wellbeing

• Responsibility to keep people you know safe

• Responsibility to the wider community to reduce transmission/contribute to a collective response. insert bullet point Social contract with the state

• Fear of moral judgment by others

Keeps friends, family, and colleagues safe

Avoids social stigma

Reduces levels of transmission in population

Contributes to disease surveillance and policy/planning

Expectations of, and trust in, testing provision and providers

Expectations about the availability of testing

• Obligation of government to make testing available and accessible

• Obligation of citizens to access testing when symptomatic

• Responsibility of citizens not to waste public resources

• Making profit from a public good considered unethical

Concerns about wasting tests

Concerns about testing, or testing data, as a commodity rather than a public good

Experiences of symptoms and testing decisions

COVID-19 testing criteria (continuous cough, temperature) are experienced as ambiguous

• Responsibility for the risk one poses to others, and moral duty to test when symptomatic or at increased risk of infection

• Ethical tensions between moral responsibility to test versus uncertainty about symptoms and/or personal/social/economic costs of testing

Concerns about exposure and risk

Accessing tests

Booking systems can be arduous to navigate

• Frustration with government over challenges of accessing tests

• Individual responsibility for not spreading infection through travel (e.g., public transport)

• Obligations to employer

Challenges getting to a testing centre

Taking time off work

Sample collection

Experiences of physical discomfort

• Duty to get oneself or one’s child tested

• Parental responsibility for children’s physical and emotional wellbeing

• Frustration with government over hidden challenges of testing

Difficulties interpreting instructions and guidance

Doubts about accuracy of self-swabbing method

Waiting for, receiving, interpreting, and acting on results

Ambivalence about self-isolating while awaiting a test result

• Lack of recognition by government of personal costs of testing and isolation

• Ethical obligation to isolate balanced with personal circumstances and/or social obligations to others

• Responsibility for self-diagnosis

Negative test result enables a return to work, and social obligations to be fulfilled

People question accuracy of testing when test results do not align with their diagnostic suspicions

Willingness to self-isolate following a positive test result, despite anticipated challenges