Table 1 Participant Demographics. As reported via survey by parent
From: Diagnosis patterns of sickle cell disease in Ghana: a secondary analysis
Variable | All (n = 354) |
|---|---|
Age (years) | |
Median (IQR) | 23 (13–32) |
Adults (> = 18 years) | 235 (67.7%) |
Children (< 18 years) | 112 (32.3%) |
Missing age = 7 | |
Sex | |
Male | 164 (46.5%) |
Female | 189 (53.5%) |
Missing sex = 1 | |
Patient Genotype | |
Severe SCD | |
Hb SS | 230 (65.5%) |
Hb S Beta Thalassemia-zero | 5 (1.4%) |
Mild SCD | |
Hb SC | 111 (31.6%) |
Hb S Beta Thalassemia-plus | 3 (0.9%) |
Other | 2 (0.6%) |
Missing genotype = 3 | |
Age of SCD Diagnosis | |
0–6 months old | 39 (11.0%) |
7–11 months old | 19 (5.4%) |
1–2 years old | 56 (15.8%) |
3–4 years old | 43 (12.2%) |
5–10 years old | 101 (28.5%) |
11–14 years old | 41 (11.6%) |
15+ years old | 55 (15.5%) |
No missing data | |
Mechanism of SCD Diagnosis | |
“Blood test…” | |
For pain crisis | |
At the hospital/ER | 169 (49.3%) |
At the pediatrician’s office | 57 (16.6%) |
Because child in family had SCD | 26 (7.6%) |
At birth (newborn screen) | 19 (5.5%) |
For another illness (not pain crisis) | 55 (16.0%) |
Other | 17 (5.0%) |
Missing diagnosis mechanism = 11 | |