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Table 1 Reported Continuum of Care stages and corresponding definitions in the 209 full-text reviewed studies

From: HIV continuum of care: expanding scope beyond a cross-sectional view to include time analysis: a systematic review

Stage

Data source

Definition

PLHIV (N = 76, 1st stage in 76 of them)

 29

Surveillance

Estimated by mathematical modeling (ECDC modeling toola, Spectrumb or other)

 45

Survey

Individuals testing positive, previously diagnosed or undiagnosed

 2

Cohort

Estimated by mathematical modeling (ECDC modeling tool, Spectrum or other)

Diagnosed (N = 120, 1st stage in 67 of them)

 51

Surveillance

 

 67

Survey

Self reported (66), confirmed by reviewing medical records (1)

 2

Estimated

 

Linked (N = 170, 1st stage in 66 of them)

 34

Surveillance

Examined at least once (31) or in specific time interval after diagnosis (2), Other (1)

 76

Cohort

Considered by definition linked as cohort participant (58), Examined at least once (17), Other (1)

 53

Survey

Self reported (31), Examined at least once (19) or in specific time interval (1), Other (2)

 7

Other

As Reported by participating countries (1), Health/social insurance records (2), cohort and survey data (1), comparison of multiple definitions-sources (1), Laboratory database (1), medical records (2)

Retained (N = 120, 1st stage in 1 of them)

 28

Surveillance

Examined at least once (4) or in specific time interval (23) after linkage, Other (1)

 57

Cohort

Examined at least once (22) or at specific interval(s) (31) after linkage, Considered retained as cohort participant (3), Other (1)

 32

Survey

Self reported (8), Examined at least once (6) or in specific time interval (18) after linkage

 3

Other

Examined at least once (1) or in specific time interval (2) after linkage

Treatment (N = 163, 1st stage in 6 of them)

 16

Surveillance

Medical records: Ever on ART (12), Currently on ART (4)

 82

Cohort

Medical records: Ever (60), Currently (13), Initiated in specific interval from diagnosis (6), Time spent on ART (1), Non-specified (2)

 53

Survey

Self reported: Ever (11), Current (37), Adherence (5)

 12

Other (multiple: 5, countries estimates: 4, Lab database: 2, RCT: 1)

Ever (7), Current (5)

Viral Suppression (N = 162)

 47

Surveillance

Medical records (47)

 78

Cohort

Medical records (78)

 35

Survey

Self reported (16), Laboratory test result in the context of the survey (18), Combination of information from medical records and exams during the study (1)

 2

Clinical Trials

Examination meant for the study

  1. aECDC HIV modelling tool can be downloaded from https://www.ecdc.europa.eu/en/publications-data/hiv-modelling-tool
  2. bSpectrum can be downloaded from www.avenirhealth.org