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Table 2 Suubi+Adherence-R2 Study Measures

From: Suubi+Adherence-Round 2: A study protocol to examine the longitudinal HIV treatment adherence among youth living with HIV transitioning into young adulthood in Southern Uganda

Variable

Measurement

Reliability

Timepoint

Demographics (Respondent: Adolescent Participant)

Age; sex (assigned at birth), orphan status (single vs. double); socioeconomic status; family composition/structure; caregiver educational level

Socio-demographic questionnaire

n/a

aT1-RC, 12, 24, 36, 48

Moderators (Respondent: Adolescent Participant)

Rural/urban/semi-urban; exposure to outside HIV/STI-related programs; economic/household income; asset accumulation

 

aT1-RC, 12, 24, 36, 48

Potential Mechanisms of Change (Respondent: Adolescent Participant)

Self-efficacy

Adapted Tennessee Self-Concept Scale [147] (TSC-2) (pretested in Suubi Studies)

0.81

aT1-RC, 12, 24, 36, 48

Education plans/aspirations

Adapted Monitoring the Future Survey [148]

n/a

aT1-RC, 12, 24, 36, 48

Motivation to participate

Questions tested in previous studies [103, 124, 149, 150]

n/a

aT1-RC, 12, 24, 36, 48

Family Support

Social Support Behaviors Scale (SS-B) [151]Family Cohesion Scale [152], Krauss Interview [153]Parent Child Relationship Inventory (PCRI) [154]

0.77 0.69 0.91

aT1-RC, 12, 24, 36, 48

Family Stability

Socio-demographic questionnaire

n/a

aT1-RC, 12, 24, 36, 48

Hopelessness

Beck Hopelessness Scale [152]

0.79

aT1-RC, 12, 24, 36, 48

Self-esteem

Rosenberg Self-Esteem Scale [155]

0.77-0.88

aT1-RC, 12, 24, 36, 48

Condom Negotiation Self-Efficacy

Condom negotiation self-efficacy scale [156]

0.80

aT1-RC, 12, 24, 36, 48

Sexual Communication Skills

Sexual Communication Scale [157]

0.80

aT1-RC, 12, 24, 36, 48

Transitions (education, employment, residential independence, prosocial transition, relationship/marital status, pregnancy/parenthood

Demographics, MTF, Work history interview, Relationship assessment scale, Adolescent Sexual Behavior Assessment (ASBA), additional prosocial activities

 

aT1-RC, 12, 24, 36, 48

Social Support

Multidimensional scale of perceived social support MSPSS [158]

0.84

aT1-RC, 12, 24, 36, 48

Access to services

RBA Services [159], Treatment Services Review (TSR) teen and adult versions [160,161,162]

.66-.83

aT1-RC, 12, 24, 36, 48

Cost of staff time, supplies, overhead for IDAs

Project records; Admin. Review

n/a

ongoing

Substance misuse

Questions adapted from PhenX Toolkit [163], Alcohol, Smoking, and Substance Involvement Screening Test [164], DISC-IV modules, CIDI modules

n/a; 0.58-0.90

aT1-RC, 12, 24, 36, 48

HIV stigma/disclosure

CASAH Social Disclosure Interview [165], Social impact scale [166]

 

aT1-RC, 12, 24, 36, 48

Cognitive function

Peabody Picture Vocabulary Test (PPVT) [167], Symbol Digit Modalities Test (SDMT) [168], Color Trails Test [169], WHO_UCLA Auditory Verbal Learning Test [170], Grooved Pegboard Test [171]

0.61-0.88,

0.76,

0.64-0.79, 0.66, 0.85-0.91

aT1-RC, 12, 24, 36, 48

Primary Outcomes (Respondent: Adolescent Participant)

Viral load/Virologic Suppression*

Biomedical data: Viral load*

n/a

aT1-RC, 12, 24, 36, 48

Secondary Outcomes (Respondent: Adolescent Participant)

Adherence

Self-Report Questionnaire, Pill Counts, adherence self-efficacy [172]

 

aT1-RC, 12, 24, 36, 48

Financial/economic stability (savings and asset accumulation)

Bank statements, MIS IDA, and American Dream Policy Demonstration [173]

n/a

aT1-RC, 12, 24, 36, 48

Sexual risk taking behavior:

Time-line Follow Back (TFLB) [174, 175] Adapted Youth Aids Prevention Project (used in Suubi & CHAMP) [176]

n/a

aT1-RC, 12, 24, 36, 48

Mental Health Functioning

Center for Epidemiological Studies-Depression Scale (CES-D) [177]

0.65

aT1-RC, 12, 24, 36, 48

STIs

Biomedical data: Gonorrhea, Chlamydia, Trichomonas

n/a

aT1-RC, 12, 24, 36, 48

  1. aT1-RC – Time 1 at reconsenting.