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Table 3 Advantages, limitations, and programmatic practicality of six measures of retention in care for PMTCT option B+ programs

From: Measuring retention in care for HIV-positive pregnant women in Prevention of Mother-to-Child Transmission of HIV (PMTCT) option B+ programs: the Mozambique experience

Retention definition

Advantages

Limitations

Programmatic practicality

‘Point’ retention

Easy to measure

Assessed at a single time point

Provide a transversal picture of retention

Does not consider visit consistency of the MIP

Does not consider whether the women fully adhered to the 12-month visit schedule

Not aligned with important PMTCT milestones (i.e. delivery, EID, or final HIV testing)

Programmatic definition of retention

Achievable with simple health information systems (e.g. paper-based registers)

WHO

Easy to measure

Assessed at a single time point

Provide a transversal picture of retention

More specific in detecting patients adhering to the 12-month visit (up to 15-months only)

Does not consider visit consistency of the MIP

Not aligned with important PMTCT milestones (i.e. delivery, EID, or the end of breastfeeding)

As above

MOH

Easy to measure

Assessed at a single time point

Provides a transversal picture of retention

Considers whether the women fully adhered to the 12-month visit schedule

As above

Programmatic definition of retention

Achievable with simple health information systems (e.g. paper-based registers)

Cohort based approach for calculation

IATT

Considers whether the women fully adhered to the 12-month visit schedule

Captures visit consistency

Can be adapted to align with the follow-up of the MIP

More complex to measure (ideally requires an ePLD or POC EMR)

Not systematically aligned with national PMTCT follow-up guidelines but can be modified accordingly

Probable need of data triangulation with other data sources (e.g. pharmacy, laboratory) and linkage with unique IDN

Relevant in capturing visit consistency of the MIP, can be aligned with important PMTCT milestones

Ideal if integrated POC testing services for the MIP are available

Better alternative than single time point estimations

‘Appointment adherence’ retention

Considers whether the women truly adhered to the 12-month visit schedule

Capture visit consistency

Measurable with paper-based longitudinal cohort based registers (total # of completed visits done/total scheduled visits)

Does not capture the regularity or timeliness of completed visits

Not aligned with important PMTCT milestones for the MIP

Highly dependent on data completeness of denominator (# of scheduled visits)

Need of data triangulation with other data sources (e.g. pharmacy, laboratory) and linkage with unique IDN

Achievable with simple health information systems

Better alternative than single time point estimations

‘On-time adherence’ retention

Considers whether the women fully adhered to the 12-month visit schedule

Ideal to capture correct levels of engagement in care for PMTCT (regularity and timeliness)

Aligned with important milestones of PMTCT follow-up for the MIP

More complex to measure (requires an ePLD or POC EMR)

Highly dependent on data completeness of denominator (# of scheduled visits)

Need of data triangulation with other data sources (e.g. pharmacy, laboratory) and linkage with unique IDN

Time consuming activity not compatible with one-stop model PMTCT services in the absence of electronic databases

Adapted for research purposes

Not compatible with routine monitoring of retention in care of MIPs

  1. EID early infant diagnosis, EMR electronic medical record, ePLD electronic patient-level database, IATT Inter-Agency Task Team, IDN identification number, MIP mother-infant pair, MOH Ministry of Health, POC point-of-care, PMTCT for prevention of mother-to-child transmission, WHO World Health Organization