| 1. Time (time interval to diagnosis and treatment) | 1.1 Efforts and avenues taken in the referral pathway |
| 1.2 Determinants influencing the referral pathway |
| 1.3 Patient navigation at the treating hospital |
| 2. Importance of social supportive care (facilitated or depleted support in addition to medical care) | 2.1 Religious and cultural beliefs |
| 2.2 Family and social dynamics |
| 2.3 Ability to stay while receiving treatment |
| 2.4 Health care provider-patient support |
| 3. Accumulative impacts of the journey (overall impacts upon families) | 3.1 Financial impacts |
| 3.2 Ongoing emotional and psychological impacts of the pathway |
