Table 2 Themes and sub-themes derived from data analysis

1. Time (time interval to diagnosis and treatment)

1.1 Efforts and avenues taken in the referral pathway

1.2 Determinants influencing the referral pathway

1.3 Patient navigation at the treating hospital

2. Importance of social supportive care (facilitated or depleted support in addition to medical care)

2.1 Religious and cultural beliefs

2.2 Family and social dynamics

2.3 Ability to stay while receiving treatment

2.4 Health care provider-patient support

3. Accumulative impacts of the journey (overall impacts upon families)

3.1 Financial impacts

3.2 Ongoing emotional and psychological impacts of the pathway