HIV prevention and HIV care among transgender and gender diverse youth: design and implementation of a multisite mixed-methods study protocol in the U.S.

Jadwin-Cakmak, Laura; Reisner, Sari L.; Hughto, Jaclyn M. W.; Salomon, Liz; Martinez, Miguel; Popoff, Elliot; Rivera, Bré Anne; Harper, Gary W.

doi:10.1186/s12889-019-7605-4

Table 2 IDI Guide for TGD Youth

From: HIV prevention and HIV care among transgender and gender diverse youth: design and implementation of a multisite mixed-methods study protocol in the U.S.

Section	Example Questions
Introduction/Rapport Building	• How do you spend your time? • How do you identify in terms of gender? • At what age did you begin to identify as [gender identity]?
Resilience	• What are some of the things that help you deal with the stress that comes along with your gender identity? • What do you think are some of the positive things about being a person with your gender identity?
Gender Affirmation	[After providing introduction to social, medical, and legal gender affirming changes] • What changes, if any, have you made? • What have these changes been like for you?
General Healthcare Experiences	• Tell me about some experiences you’ve had while trying to use or while using healthcare services in general. • Tell me about any barriers you have experienced while using healthcare services, or while trying to use healthcare services. • Tell me about any facilitators or things that have helped you access healthcare services.
Primary HIV Prevention	• Tell me a little bit about your experiences with HIV prevention programs and services. • What things made it harder or kept you from using HIV prevention services? • What things helped you [would have helped you] use prevention HIV programs and services?
HIV Testing	• Tell me a little bit about your experiences with HIV testing. • What things made it harder or kept you from getting tested? • What things helped you or made it easier to get tested?
HIV Test Results	• Tell me a little bit about your experiences receiving HIV test results. • What made it more difficult to receive your results? • What things made it easier to receive your results?
HIV Continuum of Care^a	Participants were asked about experiences, barriers, and facilitators across each of the following Continuum stages: Linkage to HIV Care, Engagement in HIV Care, Retention in HIV Care, Initiation of ART, Adherence to ART, and Viral Suppression.
Program Recommendations	• What kinds of programs, activities, or events would you like to see for transgender and gender diverse youth, or specifically for young people who share your gender identity? • What recommendations do you have for providers who work with transgender and gender diverse youth?

^aQuestions about the HIV Continuum of Care were asked only of TGD participants living with HIV

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