Table 1 Description of institutions and their activities
Variables | N (%) |
|---|---|
Type of institution | 95 |
Medical and social establishment | 12 (12.6) |
Home care facility | 42 (44.2) |
Training institute | 16 (16.8) |
Patient and family association | 1 (1.1) |
Hospital/clinic | 24 (25.3) |
Status of the establishment | |
Public | 85 (89.5) |
Private | 10 (10.5) |
Main mission of the establishment | |
Education/training | 16 (16.8) |
Care and services | 78 (82.1) |
Support, advice and guidance | 1 (1.1) |
Existing activities in the institutions | N = 94 |
Activities related to organizational matters | |
Ethics committee | 57 (60.6) |
Management fee | 53 (56.4) |
Commission to support a specific population | 20 (21.3) |
Welcoming newcomers/patients | 32 (34.0) |
None | 2 (2.1) |
Don’t know | 8 (8.5) |
Not applicable to my institution | 9 (9.6) |
Activities related to the provision of care | |
Respite care | 50 (52.6) |
Nursing care | 82 (86.3) |
Care seminars | 72 (75.8) |
Patient/family needs assessment | 76 (80.0) |
Implementation of patient/family care plans | 75 (79.0) |
Care coordination | 73 (76.8) |
Analysis of complex care practice | 69 (72.6) |
Announcement of a diagnosis | 23 (24.2) |
Health education/therapeutic education | 69 (72.6) |
None | 1 (1.1) |
Don’t know | 1 (1.1) |
Not applicable to my institution | 8 (8.4) |
Activities related to the service offer | |
Animations | 43 (45.3) |
Socio-cultural activities | 29 (30.5) |
Practical help | 58 (61.1) |
Accompaniment (race …) | 61 (64.2) |
One-time call for help | 27 (28.4) |
Meal provision | 54 (56.8) |
None | 5 (5.3) |
Don’t know | 3 (3.2) |
Not applicable to my institution | 12 (12.6) |
Activities related to training | |
Learning through theoretical education | 88 (92.6) |
Learning through practical teaching | 79 (83.2) |
Learning through teaching using simulation | 29 (30.5) |
Learning through practical internships | 65 (68.4) |
Learning through patients/expert families | 20 (21.1) |
Initial training of carers | 61 (64.2) |
Postgraduate training for carers | 63 (66.3) |
None | 0 (0) |
Don’t know | 1 (1.1) |
Not applicable to my institution | 2 (2.1) |
Research activities | |
Design of research protocols | 39 (41.5) |
Fundraising for the project | 33 (35.1) |
Request to the ethics committee | 40 (42.6) |
Research coordination sessions | 25 (26.6) |
Participation of scientific days | 26 (27.7) |
None | 8 (8.5) |
Don’t know | 22 (23.4) |
Not applicable to my institution | 7 (7.5) |
Accompaniment and support activities | |
Support sessions | 41 (43.2) |
Advice to patients/families | 61 (64.2) |
Coordination/orientation of care pathways | 54 (56.8) |
Help with administrative procedures | 55 (57.9) |
Family relief/respite | 54 (56.8) |
None | 5 (5.3) |
Don’t know | 4 (4.2) |
Not applicable to my institution | 9 (9.5) |
Specific services for family caregivers | |
Currently, your institution offers services for caregivers | 31 (32.6) |
Among institutions providing services for helping pockets, average number (± standard deviation, median) | 2.6 (±2.8, 1) |