Type of institution
|
95
|
Medical and social establishment
|
12 (12.6)
|
Home care facility
|
42 (44.2)
|
Training institute
|
16 (16.8)
|
Patient and family association
|
1 (1.1)
|
Hospital/clinic
|
24 (25.3)
|
Status of the establishment
|
Public
|
85 (89.5)
|
Private
|
10 (10.5)
|
Main mission of the establishment
|
Education/training
|
16 (16.8)
|
Care and services
|
78 (82.1)
|
Support, advice and guidance
|
1 (1.1)
|
Existing activities in the institutions
|
N = 94
|
Activities related to organizational matters
|
Ethics committee
|
57 (60.6)
|
Management fee
|
53 (56.4)
|
Commission to support a specific population
|
20 (21.3)
|
Welcoming newcomers/patients
|
32 (34.0)
|
None
|
2 (2.1)
|
Don’t know
|
8 (8.5)
|
Not applicable to my institution
|
9 (9.6)
|
Activities related to the provision of care
|
Respite care
|
50 (52.6)
|
Nursing care
|
82 (86.3)
|
Care seminars
|
72 (75.8)
|
Patient/family needs assessment
|
76 (80.0)
|
Implementation of patient/family care plans
|
75 (79.0)
|
Care coordination
|
73 (76.8)
|
Analysis of complex care practice
|
69 (72.6)
|
Announcement of a diagnosis
|
23 (24.2)
|
Health education/therapeutic education
|
69 (72.6)
|
None
|
1 (1.1)
|
Don’t know
|
1 (1.1)
|
Not applicable to my institution
|
8 (8.4)
|
Activities related to the service offer
|
Animations
|
43 (45.3)
|
Socio-cultural activities
|
29 (30.5)
|
Practical help
|
58 (61.1)
|
Accompaniment (race …)
|
61 (64.2)
|
One-time call for help
|
27 (28.4)
|
Meal provision
|
54 (56.8)
|
None
|
5 (5.3)
|
Don’t know
|
3 (3.2)
|
Not applicable to my institution
|
12 (12.6)
|
Activities related to training
|
Learning through theoretical education
|
88 (92.6)
|
Learning through practical teaching
|
79 (83.2)
|
Learning through teaching using simulation
|
29 (30.5)
|
Learning through practical internships
|
65 (68.4)
|
Learning through patients/expert families
|
20 (21.1)
|
Initial training of carers
|
61 (64.2)
|
Postgraduate training for carers
|
63 (66.3)
|
None
|
0 (0)
|
Don’t know
|
1 (1.1)
|
Not applicable to my institution
|
2 (2.1)
|
Research activities
|
Design of research protocols
|
39 (41.5)
|
Fundraising for the project
|
33 (35.1)
|
Request to the ethics committee
|
40 (42.6)
|
Research coordination sessions
|
25 (26.6)
|
Participation of scientific days
|
26 (27.7)
|
None
|
8 (8.5)
|
Don’t know
|
22 (23.4)
|
Not applicable to my institution
|
7 (7.5)
|
Accompaniment and support activities
|
Support sessions
|
41 (43.2)
|
Advice to patients/families
|
61 (64.2)
|
Coordination/orientation of care pathways
|
54 (56.8)
|
Help with administrative procedures
|
55 (57.9)
|
Family relief/respite
|
54 (56.8)
|
None
|
5 (5.3)
|
Don’t know
|
4 (4.2)
|
Not applicable to my institution
|
9 (9.5)
|
Specific services for family caregivers
|
Currently, your institution offers services for caregivers
|
31 (32.6)
|
Among institutions providing services for helping pockets, average number (± standard deviation, median)
|
2.6 (±2.8, 1)
|