From: Economic burden of multiple sclerosis in a population with low physical disability
Professional support | |||||
---|---|---|---|---|---|
EDSS 0–1 (n = 67) | EDSS 1.5–3.0 (n = 77) | EDSS 3.5–5.5 (n = 34) | EDSS ≥ 6 (n = 21) | Overall (n = 199) | |
Formal caregiver at study visit; n (%) | 15 (22.4%) | 25 (32.5%) | 20 (58.8%) | 12 (57.1%) | 72 (36.2%) |
Support staff (professionals or transportation) paid by the patient; n (%) | 5 (7.5%) | 25 (32.5%) | 14 (41.2%) | 12 (57.1%) | 56 (28.1%) |
Type of professional; n (%) | |||||
- Caregiver | 0 (0%) | 0 (0%) | 1 (2.9%) | 0 (0%) | 1 (0.5%) |
- Physiotherapist | 2 (3.0%) | 15 (19.5%) | 10 (29.4%) | 5 (23.8%) | 32 (16.1%) |
- Person to do housework | 2 (3.0%) | 8 (10.4%) | 3 (8.8%) | 5 (23.8%) | 18 (9.0%) |
- Private ophthalmologist | 0 (0%) | 2 (2.6%) | 1 (2.9%) | 1 (4.8%) | 4 (2.0%) |
- Private neurologist | 0 (0%) | 1 (1.3%) | 0 (0%) | 0 (0%) | 1 (0.5%) |
- Private psychologist | 2 (3.0%) | 5 (6.5%) | 1 (2.9%) | 0 (0%) | 8 (4.0%) |
- Taxi driver | 1 (1.5%) | 4 (5.2%) | 6 (17.6%) | 4 (19.0%) | 15 (7.5%) |
- Other | 0 (0%) | 7 (9.1%) | 5 (14.7%) | 1 (4.8%) | 13 (6.5%) |
Informal support | |||||
EDSS 0–1 (n = 67) | EDSS 1.5–3.0 (n = 77) | EDSS 3.5–5.5 (n = 34) | EDSS ≥ 6 (n = 21) | Overall (n = 199) | |
Informal caregiver at study visit; n (%) | 13 (19.4%) | 30 (39.0%) | 28 (82.4%) | 18 (85.7%) | 89 (44.7%) |
Relationship to patient; n (%) | |||||
- Husband/wife | 8 (11.9%) | 19 (24.7%) | 21 (61.8%) | 12 (57.1%) | 60 (30.2%) |
- Other relative | 5 (7.5%) | 18 (23.4%) | 19 (55.9%) | 9 (42.9%) | 51 (25.6%) |
- Neighbor | 1 (1.5%) | 2 (2.6%) | 1 (2.9%) | 1 (4.8%) | 5 (2.5%) |
- Volunteer | 0 (0%) | 0 (0%) | 0 (0%) | 1 (4.8%) | 1 (0.5%) |
- Other | 1 (1.5%) | 1 (1.3%) | 1 (2.9%) | 0 | 3 (1.5%) |
Use of non-reimbursed devices | |||||
EDSS 0–1 (n = 67) | EDSS 1.5–3.0 (n = 77) | EDSS 3.5–5.5 (n = 34) | EDSS ≥ 6 (n = 21) | Overall (n = 199) | |
Use of non-reimbursed devices; n (%) | 1 (1.5%) | 11 (14.3%) | 15 (44.1%) | 16 (76.2%) | 43 (21.6%) |
Type of device; n (%) | |||||
- Wheelchair | 0 (0%) | 0 (0%) | 1 (2.9%) | 3 (14.3%) | 4 (2.0%) |
- Crutch/walking stick | 0 (0%) | 3 (3.9%) | 7 (20.6%) | 11 (52.4%) | 21 (10.6%) |
- Toilet seats or grab bars | 0 (0%) | 2 (2.6%) | 4 (11.8%) | 5 (23.8%) | 11 (5.5%) |
- Home adaptation | 0 (0%) | 6 (7.8%) | 5 (14.7%) | 5 (23.8%) | 16 (8.0%) |
- Vehicle adaptation | 0 (0%) | 1 (1.3%) | 2 (5.9%) | 3 (14.3%) | 6 (3.0%) |
- Articulated bed | 0 (0%) | 0 (0%) | 0 (0%) | 2 (9.5%) | 2 (1.0%) |
- Other | 1 (1.5%) | 1 (1.3%) | 5 (14.7%) | 6 (28.6%) | 13 (6.5%) |