TY - BOOK PY - 2014 DA - 2014// TI - Birth defects surveillance: a manual for programme managers PB - World Health Organization CY - Geneva ID - ref1 ER - TY - BOOK AU - Mossey, P. A. AU - Catilla, E. E. PY - 2003 DA - 2003// TI - Global registry and database on craniofacial anomalies: report of a WHO registry meeting on craniofacial anomalies ID - Mossey2003 ER - TY - JOUR AU - Mossey, P. A. AU - Little, J. AU - Munger, R. G. AU - Dixon, M. J. AU - Shaw, W. C. PY - 2009 DA - 2009// TI - Cleft lip and palate JO - Lancet VL - 374 UR - https://doi.org/10.1016/S0140-6736(09)60695-4 DO - 10.1016/S0140-6736(09)60695-4 ID - Mossey2009 ER - TY - JOUR AU - Tolarová, M. M. AU - Cervenka, J. PY - 1998 DA - 1998// TI - Classification and birth prevalence of orofacial clefts JO - Am J Med Genet A VL - 75 UR - https://doi.org/3.0.CO;2-R DO - 3.0.CO;2-R ID - Tolarová1998 ER - TY - JOUR AU - Kromberg, J. G. AU - Jenkins, T. PY - 1982 DA - 1982// TI - Common birth defects in south African blacks JO - S Afr Med J VL - 62 ID - Kromberg1982 ER - TY - JOUR AU - Morrison, G. AU - Cronje, A. S. AU - Vuuren, I. AU - Op't, H. J. PY - 1985 DA - 1985// TI - The incidence of cleft lip and palate in the western cape JO - S Afr Med J VL - 68 ID - Morrison1985 ER - TY - JOUR AU - van Wyk, P. J. AU - Bütow, K. W. AU - van der Merwe, C. A. AU - Kleynhans, E. E. PY - 1987 DA - 1987// TI - Incidence and clinical appearance of cleft deformities in the Transvaal JO - J Dent Assoc S Afr VL - 42 ID - van Wyk1987 ER - TY - JOUR AU - Pham, A. M. AU - Tollefson, T. T. PY - 2007 DA - 2007// TI - Cleft deformities in Zimbabwe, Africa: socioeconomic factors, epidemiology, and surgical reconstruction JO - Arch Facial Plast Surg VL - 9 UR - https://doi.org/10.1001/archfaci.9.6.qsp70001 DO - 10.1001/archfaci.9.6.qsp70001 ID - Pham2007 ER - TY - JOUR AU - Fraser, G. R. AU - Calnan, J. S. PY - 1961 DA - 1961// TI - Cleft lip and palate: seasonal incidence, birth weight, birth rank, sex, site, associated malformations and parental age JO - Arch Dis Childhood VL - 36 UR - https://doi.org/10.1136/adc.36.188.420 DO - 10.1136/adc.36.188.420 ID - Fraser1961 ER - TY - JOUR AU - Mednick, L. AU - Snyder, J. AU - Schook, C. AU - Blood, A. E. AU - Brown, S. E. AU - Weatherley-White, R. C. A. PY - 2013 DA - 2013// TI - Causal attributions of cleft lip and palate across cultures JO - Cleft Palate Craniofac J VL - 50 UR - https://doi.org/10.1597/11-300R1 DO - 10.1597/11-300R1 ID - Mednick2013 ER - TY - JOUR AU - Milerad, J. AU - Larson, O. AU - Hagberg, C. AU - Ideberg, M. PY - 1997 DA - 1997// TI - Associated malformations in infants with cleft lip and palate: a prospective, pulation-based study JO - Pediatrics VL - 100 UR - https://doi.org/10.1542/peds.100.2.180 DO - 10.1542/peds.100.2.180 ID - Milerad1997 ER - TY - JOUR AU - Msamati, B. C. AU - Igbigbi, P. S. AU - Chisi, J. E. PY - 2000 DA - 2000// TI - The incidence of cleft lip, cleft palate, hydrocephalus and spina bifida at queen Elizabeth central hospital, Blantyre JO - Malawi Centr Afr J Med VL - 46 ID - Msamati2000 ER - TY - JOUR AU - Bütow, K. -. W. AU - Louw, B. AU - Hugo, S. R. AU - Grimbeeck, R. J. PY - 1991 DA - 1991// TI - Tensor veli palatini muscle tension sling for eustachian tube function in cleft palate: surgical technique and audiometric examination JO - J Cranio-Maxillofac Surg VL - 19 UR - https://doi.org/10.1016/S1010-5182(05)80610-9 DO - 10.1016/S1010-5182(05)80610-9 ID - Bütow1991 ER - TY - JOUR AU - Hanikeri, M. AU - Savundra, J. AU - Gillett, D. AU - Walters, M. AU - McBain, W. PY - 2006 DA - 2006// TI - Antenatal transabdominal ultrasound detection of cleft lip and palate in Western Australia from 1996 to 2003 JO - Cleft Palate Craniofac J VL - 43 UR - https://doi.org/10.1597/04-101R.1 DO - 10.1597/04-101R.1 ID - Hanikeri2006 ER - TY - JOUR AU - Hodgkinson, P. D. AU - Brown, S. AU - Duncan, D. AU - Grant, C. AU - McNaughton, A. AU - Thomas, P. AU - Mattick, C. R. PY - 2005 DA - 2005// TI - Management of children with cleft lip and palate: a review describing the application of multidisciplinary team working in this condition based upon the experiences of a regional cleft lip and palate Centre in the United Kingdom JO - Fetal Matern Med Rev VL - 16 UR - https://doi.org/10.1017/S0965539505001452 DO - 10.1017/S0965539505001452 ID - Hodgkinson2005 ER - TY - JOUR AU - James, J. N. AU - Schlieder, D. W. PY - 2016 DA - 2016// TI - Prenatal counseling, ultrasound diagnosis, and the role of maternal-fetal medicine of the cleft lip and palate patient JO - Oral Maxillofac Surg Clin North Am VL - 28 UR - https://doi.org/10.1016/j.coms.2015.12.005 DO - 10.1016/j.coms.2015.12.005 ID - James2016 ER - TY - JOUR AU - Shaw, W. C. AU - Dahl, E. AU - Asher-McDade, C. AU - Brattström, V. AU - Mars, M. AU - McWilliam, J. PY - 1992 DA - 1992// TI - A six-center international study of treatment outcome in patients with clefts of the lip and palate: part 5. General discussion and conclusions JO - Cleft Palate Craniofac J VL - 29 UR - https://doi.org/2.3.CO;2 DO - 2.3.CO;2 ID - Shaw1992 ER - TY - CHAP AU - Costello, B. J. AU - Ruiz, R. L. ED - Miloro, M. ED - Ghali, G. E. ED - Larsen, P. E. ED - Waite, P. D. PY - 2004 DA - 2004// TI - Cleft lip and palate: comprehensive treatment planning and primary repair BT - Peterson’s textbook of maxillofacial surgery PB - Hamilton CY - London BC Decker Inc ID - Costello2004 ER - TY - JOUR AU - Bell, J. AU - Nassar, N. AU - Turner, R. AU - Bower, C. AU - Gillett, D. AU - McBain, W. AU - Raynes-Greenow, C. PY - 2016 DA - 2016// TI - Hospitalisations up to adulthood for children born with orofacial clefts JO - J Paediatr Child Health VL - 52 UR - https://doi.org/10.1111/jpc.13024 DO - 10.1111/jpc.13024 ID - Bell2016 ER - TY - JOUR AU - Dahllof, G. AU - Ussisoo-Joandi, R. AU - Ideberg, M. AU - Modeer, T. PY - 1989 DA - 1989// TI - Caries, gingivitis, and dental abnormalities in preschool children with cleft lip and/or palate JO - Cleft palate J VL - 26 ID - Dahllof1989 ER - TY - JOUR AU - Kummer, A. W. PY - 2016 DA - 2016// TI - Evaluation of speech and resonance for children with craniofacial anomalies JO - Facial Plast Surg Clin North Am VL - 24 UR - https://doi.org/10.1016/j.fsc.2016.06.003 DO - 10.1016/j.fsc.2016.06.003 ID - Kummer2016 ER - TY - JOUR AU - Miller, C. K. PY - 2011 DA - 2011// TI - Feeding issues and interventions in infants and children with clefts and craniofacial syndromes JO - Semin Speech Lang VL - 32 UR - https://doi.org/10.1055/s-0031-1277714 DO - 10.1055/s-0031-1277714 ID - Miller2011 ER - TY - JOUR AU - Shapira, Y. AU - Lubit, E. AU - Kuftinec, M. M. PY - 2000 DA - 2000// TI - Hypodontia in children with various types of clefts JO - Angle Orthod VL - 70 ID - Shapira2000 ER - TY - JOUR AU - Vichi, M. AU - Franchi, L. PY - 1995 DA - 1995// TI - Abnormalities of the maxillary incisors in children with cleft lip and palate JO - ASDC J Dent Child VL - 62 ID - Vichi1995 ER - TY - JOUR AU - Bellardie, H. AU - Harris, A. PY - 2008 DA - 2008// TI - What do parents of newborn babies with cleft lip and/or palate want to know? JO - S Afr J Child Health VL - 2 ID - Bellardie2008 ER - TY - JOUR AU - Byrnes, A. L. AU - Berk, N. W. AU - Cooper, M. E. AU - Marazita, M. L. PY - 2003 DA - 2003// TI - Parental evaluation of informing interviews for cleft lip and/or palate JO - Pediatrics VL - 112 UR - https://doi.org/10.1542/peds.112.2.308 DO - 10.1542/peds.112.2.308 ID - Byrnes2003 ER - TY - JOUR AU - Endriga, M. C. AU - Kappa-Simon, K. A. PY - 1999 DA - 1999// TI - Psychological issues in craniofacial care: state of the art JO - Cleft Palate Craniofac J VL - 36 UR - https://doi.org/2.3.CO;2 DO - 2.3.CO;2 ID - Endriga1999 ER - TY - BOOK AU - Haitas-Jammine, G. PY - 2015 DA - 2015// TI - Exploring perceptions and experiences of the parents of patients: intervention services of a Johannesburg multidisciplinary cleft lip and palate team PB - University of the Witwatersrand CY - Johannesburg ID - Haitas-Jammine2015 ER - TY - JOUR AU - Ingstrup, K. G. AU - Liang, H. AU - Olsen, J. AU - Nohr, E. AU - Bech, B. AU - Wu, C. AU - Christensen, K. AU - Li, J. PY - 2013 DA - 2013// TI - Maternal bereavement in the antenatal period and oral cleft in the offspring JO - Hum Reprod VL - 28 UR - https://doi.org/10.1093/humrep/des434 DO - 10.1093/humrep/des434 ID - Ingstrup2013 ER - TY - JOUR AU - Johansson, B. AU - Ringsberg, K. C. PY - 2004 DA - 2004// TI - Parents’ experiences of having a child with cleft lip and palate JO - J Adv Nurs VL - 47 UR - https://doi.org/10.1111/j.1365-2648.2004.03075.x DO - 10.1111/j.1365-2648.2004.03075.x ID - Johansson2004 ER - TY - JOUR AU - Leonard, B. J. AU - Brust, J. D. AU - Abrahams, G. AU - Sielaff, B. PY - 1991 DA - 1991// TI - Self-concept of children and adolescents with cleft lip and or cleft palate JO - Cleft Palate Craniofac J VL - 28 UR - https://doi.org/2.3.CO;2 DO - 2.3.CO;2 ID - Leonard1991 ER - TY - JOUR AU - Nelson, J. AU - O'Leary, C. AU - Weinman, J. PY - 2009 DA - 2009// TI - Causal attributions in parents of babies with a cleft lip and/or palate and their association with psychological well-being JO - Cleft Palate Craniofac J VL - 46 UR - https://doi.org/10.1597/07-194.1 DO - 10.1597/07-194.1 ID - Nelson2009 ER - TY - JOUR AU - Nelson, P. AU - Glenny, A. M. AU - Kirk, S. AU - Caress, A. L. PY - 2012 DA - 2012// TI - Parents experiences of caring for a child with a cleft lip and/or palate: a review of the literature JO - Child Care Health Dev VL - 38 UR - https://doi.org/10.1111/j.1365-2214.2011.01244.x DO - 10.1111/j.1365-2214.2011.01244.x ID - Nelson2012 ER - TY - JOUR AU - Nusbaum, R. AU - Grubs, R. E. AU - Losee, J. E. AU - Weidman, C. AU - Ford, M. D. AU - Marazita, M. L. PY - 2008 DA - 2008// TI - A qualitative description of receiving a diagnosis of clefting in the prenatal or postnatal period JO - J Genet Couns VL - 17 UR - https://doi.org/10.1007/s10897-008-9152-5 DO - 10.1007/s10897-008-9152-5 ID - Nusbaum2008 ER - TY - JOUR AU - Olasoji, H. O. AU - Ugboko, V. I. AU - Arotiba, G. T. PY - 2007 DA - 2007// TI - Cultural and religious components in Nigerian parents’ perceptions of the aetiology of cleft lip and palate: implications for treatment and rehabilitation JO - Br J Oral Maxillofac Surg VL - 45 UR - https://doi.org/10.1016/j.bjoms.2006.09.005 DO - 10.1016/j.bjoms.2006.09.005 ID - Olasoji2007 ER - TY - JOUR AU - Pope, A. W. AU - Snyder, H. T. PY - 2005 DA - 2005// TI - Psychosocial adjustment in children and adolescents with a craniofacial anomaly: age and sex patterns JO - Cleft Palate Craniofac J VL - 42 UR - https://doi.org/10.1597/04-043R.1 DO - 10.1597/04-043R.1 ID - Pope2005 ER - TY - JOUR AU - Ter Poorten, L. AU - Louw, B. PY - 2002 DA - 2002// TI - Mothers’ experiences when their infants were diagnosed with cleft lips and/or palates JO - Health SA Gesondheid VL - 7 UR - https://doi.org/10.4102/hsag.v7i2.644 DO - 10.4102/hsag.v7i2.644 ID - Ter Poorten2002 ER - TY - JOUR AU - Thamilselvan, P. AU - Kumar, M. AU - Murthy, J. AU - Sharma, M. AU - Kumar, N. PY - 2015 DA - 2015// TI - Psychosocial issues of parents of children with cleft lip and palate in relation to their behavioral problems JO - J Cleft Lip Palate Craniofac Anom VL - 2 UR - https://doi.org/10.4103/2348-2125.150749 DO - 10.4103/2348-2125.150749 ID - Thamilselvan2015 ER - TY - JOUR AU - Young, J. L. AU - O'Riordan, M. AU - Goldstein, J. A. AU - Robin, N. H. PY - 2001 DA - 2001// TI - What information do parents of newborns with cleft lip, palate, or both want to know? JO - Cleft Palate Craniofac J VL - 38 UR - https://doi.org/2.0.CO;2 DO - 2.0.CO;2 ID - Young2001 ER - TY - JOUR AU - Zeytinoğlu, S. AU - Davey, M. P. AU - Crerand, C. AU - Fisher, K. AU - Akyil, Y. PY - 2017 DA - 2017// TI - Experiences of couples caring for a child born with cleft lip and/or palate: impact of the timing of diagnosis JO - J Marital Fam Ther VL - 43 UR - https://doi.org/10.1111/jmft.12182 DO - 10.1111/jmft.12182 ID - Zeytinoğlu2017 ER - TY - JOUR AU - Murray, C. J. L. AU - Lopez, A. D. PY - 2013 DA - 2013// TI - Measuring the global burden of disease JO - N Engl J Med VL - 369 UR - https://doi.org/10.1056/NEJMra1201534 DO - 10.1056/NEJMra1201534 ID - Murray2013 ER - TY - JOUR AU - Kesande, T. AU - Muwazi, L. M. AU - Bataringaya, A. AU - Rwenyonyi, C. M. PY - 2014 DA - 2014// TI - Prevalence, pattern and perceptions of cleft lip and cleft palate among children born in two hospitals in Kisoro District, Uganda JO - BMC Oral Health VL - 14 UR - https://doi.org/10.1186/1472-6831-14-104 DO - 10.1186/1472-6831-14-104 ID - Kesande2014 ER - TY - JOUR AU - Tabaquim, M. M. AU - Marquesini, M. A. M. PY - 2013 DA - 2013// TI - Study of the stress of parents of patients with cleft lip and palate in a surgical process JO - Estudos de PsicologiaI (Campinas) VL - 30 UR - https://doi.org/10.1590/S0103-166X2013000400005 DO - 10.1590/S0103-166X2013000400005 ID - Tabaquim2013 ER - TY - JOUR AU - Sargeant, J. PY - 2012 DA - 2012// TI - Qualitative research part II: participants, analysis, and quality assurance JO - J Grad Med Educ VL - 4 UR - https://doi.org/10.4300/JGME-D-11-00307.1 DO - 10.4300/JGME-D-11-00307.1 ID - Sargeant2012 ER - TY - BOOK AU - Miles, M. B. AU - Huberman, A. M. AU - Saldana, J. PY - 2014 DA - 2014// TI - Qualitative data analysis: a method sourcebook PB - Sage Publications CY - CA, US ID - Miles2014 ER - TY - JOUR AU - Tong, A. AU - Sainsbury, P. AU - Craig, J. PY - 2007 DA - 2007// TI - Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups JO - Int J Qual Health Care VL - 19 UR - https://doi.org/10.1093/intqhc/mzm042 DO - 10.1093/intqhc/mzm042 ID - Tong2007 ER - TY - JOUR AU - Stock, N. M. AU - Rumsey, N. PY - 2015 DA - 2015// TI - Starting a family: the experience of parents with cleft lip and/or palate JO - Cleft Palate Craniofac J VL - 52 UR - https://doi.org/10.1597/13-314 DO - 10.1597/13-314 ID - Stock2015 ER - TY - JOUR AU - Collett, B. R. AU - Speltz, M. L. PY - 2006 DA - 2006// TI - Social-emotional development of infants and young children with orofacial clefts JO - Infants Young Child VL - 19 UR - https://doi.org/10.1097/00001163-200610000-00002 DO - 10.1097/00001163-200610000-00002 ID - Collett2006 ER - TY - BOOK AU - Goffman, E. PY - 1963 DA - 1963// TI - Stigma: notes on the management of spoiled identity PB - Prentice-Hall, Englewood Cliffs CY - New Jersey ID - Goffman1963 ER - TY - JOUR AU - Conway, J. C. AU - Taub, P. J. AU - Kling, R. AU - Oberoi, K. AU - Doucette, J. AU - Jabs, E. W. PY - 2015 DA - 2015// TI - Ten-year experience of more than 35,000 orofacial clefts in Africa JO - BMC Pediatr VL - 15 UR - https://doi.org/10.1186/s12887-015-0328-5 DO - 10.1186/s12887-015-0328-5 ID - Conway2015 ER - TY - BOOK AU - Rispel, L. PY - 2016 DA - 2016// TI - Analysing the progress and fault lines of health sector transformation in South Africa ID - Rispel2016 ER - TY - JOUR AU - Coovadia, H. AU - Jewkes, R. AU - Barron, P. AU - Sanders, D. AU - McIntyre, D. PY - 2009 DA - 2009// TI - The health and health system of South Africa: historical roots of current public health challenges JO - Lancet VL - 374 UR - https://doi.org/10.1016/S0140-6736(09)60951-X DO - 10.1016/S0140-6736(09)60951-X ID - Coovadia2009 ER - TY - JOUR AU - De Sousa, A. AU - Devare, S. AU - Ghanshani, J. PY - 2009 DA - 2009// TI - Psychological issues in cleft lip and cleft palate JO - J Indian Assoc Pediatr Surg VL - 14 UR - https://doi.org/10.4103/0971-9261.55152 DO - 10.4103/0971-9261.55152 ID - De Sousa2009 ER - TY - BOOK PY - 2015 DA - 2015// TI - Transforming our world: the 2030 agenda for sustainable development PB - United Nations CY - New York ID - ref54 ER -