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Table 2 Health literacy instruments for children and adolescents

From: Generic health literacy measurement instruments for children and adolescents: a systematic review of the literature

No.

Author, year country language

Instrument

Type

Study aim

Sample size, study population, setting

Scope of measured components

Items, response format

Time of administration

Reliability

Validity, responsiveness and sensitivity

1

Davis et al., 2006 [50]

USA

English

Rapid Estimate of Adult Literacy in Medicine - Teen (REALM-teen)

Adaptation of an existing instrument for adults (REALM)

Objective measurement/performance based assessment

Validation of the REALM-teen for adolescents

N = 1533

10–19 y.

participants were 50% black, 53% female; 34% were enrolled in middle school and 66% in high school

Secondary school

Mixed setting, schools and healthcare setting

Word recognition; Pronunciation

66 items (not provided)

Health words arranged in increasing order of difficulty

Pronouncing words

Usually 2–3 min, here approx. 3 min

Internal consistency

α = .94

Convergent: SORT-R

r = .93

WRAT

r = .83

Receiver operating characteristic (ROC)

analysis: SORT-R

Area under ROC (AUC) = .84

2

Brown et al., 2007 [40]

USA

English

KidsHealth KidsPoll of Health Literacy

New instrument based on National Health Education Standards (NHES)

Subjective measurement/self-report

Investigating health literacy and its effects on health behaviour and practice

N = 1178

9–13 y.

5th – 8th grade

Secondary school

11 health education centres

Ability to understand, access and apply health information;

Interest in health;

Belief: Ability that health behaviour is affective; Attitude

8 items (provided)

Remote keypads

Close-end questions with a maximum of 5 answer choices

Not available (n.a.)

n.a.

n.a.

3

Hubbard and Rainey 2007 [41]

USA

English

“Health Literacy Instrument” no name.

New instrument based on Health Education Assessment Project (HEAP)

Objective measurement/performance based assessment (not explicitly stated by the article but indicated in the text)

To evaluate the influence of comprehensive textbook-based instruction on students’ acquisition of health-related concepts and skills

N = 669 secondary school children and adolescents

n = 333 female; n = 333 male; n = 3 missing

(Treatment group: n = 330; control group: n = 339)

School setting, N = 3 schools (n = 2 middle; n = 1 high school)

Understanding of health concepts about tobacco, physical activity, and nutrition; Ability to access information, interpersonal communication, decision-making, goal setting, and self-management

30 items (not provided)

15 items related to health concepts

15 items related to demonstrate skills

n.a.

Reliability coefficient of the concepts scale α = .76 middle school; α = .72 high school; of the skills scale α = .75 middle school; α = .76 high school

HEAP assessment items proved to be reliable

Not provided,

HEAP assessment items proved to be valid

4

Chisolm and Buchanan, 2007 [51]

USA

English

Test of Functional Health Literacy in Adults (TOFHLA) in adolescent population (TOFHLAd), 2 components TOFHLA-R & TOFHLA-N

Adaptation of an existing instrument for adults

Objective measurement/performance based assessment

Pilot validation for adolescents

N = 50

13–17 y.

n = 26 female; n = 24 male

Healthcare setting

Reading comprehension (TOFHLA-R); Numeracy (TOFHLA-N)

67 items (not provided), 2 components; TOFHLA-R has 50 reading comprehension items, cloze procedure; TOFHLA-N has 17 numeracy items

10–20 min: average of 12.9 min with a range from 8.9 to 17.3

n.a.

Concurrent: TOFHLA-R: WRAT3 r = .59 (p < .001)

REALM r = .60

(p < .001)

TOFHLA-N: WRAT3 r = .11 (p = .45)

REALM r = .18 (p = .22)

5

Steckelberg et al., 2009 [48]

Germany

German

Critical Health Competence Test (CHC)

New instrument

Objective measurement/performance based assessment

Development and validation of a questionnaire to measure critical health competencies

N = 429

15–42 y.

n = 322 (first field test); n = 255 10th and 11th from secondary schools, n = 67 university students n = 107 (second field test); n = 94 secondary schools, n = 13 university students

A. Understanding medical concepts; B. Skills of searching literature (information seeking);

C. Basic statistics (numeracy);

D. Design of experiments and sampling

72 items (not provided);

Scenarios (S) (items): S1 (16), S2 (20), S3 (15), S4 (21).

A, 15 items

B, 22 items

C, 18 items

D, 17 items

Should not exceed 90 min

Rasch analysis: Mean person parameter

S1: 395

S2: 497

S3: 635

S4: 473

Construct validity: Cohen’s d = 4.33 [95%

CI 3.51–5.16]

Rasch model WINMIRA

ANOVA = .91

6

Vardavas et al., 2009 [42]

Greece

Greek

Health Literacy Questionnaire for Children

New instrument

Subjective measurement/self-report

To locate the topics and to assess the sources of health information of adolescents

N = 369, 12–18 y.

46.6% male; 53,4% female; 97, 3% Greek nationality

Secondary school children from urban areas of Athens and Crete

Questions on health education topics; Access and source of health information (seeking); Stated satisfaction

n.a. no information on specific items is available

n.a.

n.a

n.a.

7

Schmidt et al., 2010 [43]

Germany

German

GeKoKids Questionnaire

New instrument

Mixed approach

To elaborate a set of short scales to measure important health literacy domains in children; and

To analyse their associations among each other

N = 852; aged 9–13 y., Germany

n = 401 female

n = 451 male

n = 29 migration background

Secondary school

Knowledge;

Attitudes;

Communication;

Behaviour;

Self-efficacy

17 items (provided)

Knowledge: 3 items

Communication: 3 items

Attitude: 4 items

Behaviour: 4 items

Self-efficacy: 3 items

n.a.

Internal consistencies communication α = .73

attitude α = .57

Rasch analysis:

Knowledge χ2 = 6.45, P = 0.17

Behaviour χ2 = 15.48, P = 0.12

n.a.

8

Wu et al., 2010 [44]

Canada

English

Health literacy instrument for high school students

New instrument

Objective measurement/performance based assessment

Development and validation of a health literacy measurement tool for high school students in classrooms

N = 275

secondary school children

8th n = 2

9th n = 34

10th n = 202

11th n = 16

12th n = 17

48% male

52% female

69,1% other language than English at home

30,09% language English at home

Understand;

Evaluate

47 items (not provided)

open-ended following health related reading passages

Understand: 30 items

Evaluate: 17 items

n.a.

Internal

consistency:

α = .92

Convergent:

Age, r = .17

Male gender,

r = .18

Age came to

Canada,

r = .22

Non-English

speaker,

r = .15

Mother’s edu,

r = .19

Father’s edu,

r = .22

GPA, r = .48

Time reading/

study,

r = .40 ‘fair’

9

Yu et al., 2012 [45]

China

Chinese

Health Literacy Questionnaire

New instrument

Subjective measurement/self-report

To assess the students’ health literacy gained through school health education

N = 8008

Elementary School (n = 77)

Pupils n = 4011

Middle School (n = 76)

Pupils n = 3997

Knowledge;

Attitude;

Practice (health behaviour and lifestyle)

37 items (not provided)

close-ended and open-ended

n.a.

Internal

consistency:

α = .0.73 Spearman-Brown coefficient 0.75

n.a.

10

Chinn et al., 2013 [49]

England

English

All Aspects of Health Literacy Scale (AAHLS)

New instrument

Subjective measurement/self-report

To develop a health literacy instrument to use in primary care settings

N = 146

Range: 15–82 y.

n = 114 female; n = 32 male

Ethnicity

Asian: 81

Black: 5

Mixed race: 2

White: 51

Other: 7

Healthcare setting

Functional HL;

Communicative HL;

Critical HL

14 items (provided)

Functional: 4 items

Communicative: 3 items

Critical: 7 items

Approx. 7 mins.

Internal

consistency:

α = .75

Functional HL

α = .82

Communicative HL

α = .69

Critical HL

α = .42

Convergent:

Functional vs

Communicative, r = .39

Functional vs Critical,

r = .59

Communicative vs

Critical, r = .19

11

Wallmann et al., 2012 [46]

Germany

German

Health Quiz

New instrument

Objective measurement / performance based assessment

To measure and assess health knowledge as part of health literacy

N = 699 7th grade adolescents in Germany

N = 375 male; n = 324 female

4 school types: Gymnasium; secondary school (n = 195), Realschule; secondary modern/intermediate school (n = 231), Gesamtschule; comprehensive school (n = 81), general school; Hauptschule (n = 192).

School setting

Knowledge

49 items (partly provided)

Nutrition: 7 items;

Prevention: 6 items;

Spare time activity (health promotion): 4 items;

Human body: 32 items (12 Items health behaviour / 20 items human anatomy)

Response: 4 response categories, only one right choice

20 min

n.a.

n.a.

12

Massey et al., 2013 [47]

USA

English

Multidimensional health literacy instrument

New instrument

Subjective measurement / self-report

To develop a multidimensional health literacy instrument for adolescents concerning the health environment

This study was part of a larger study that examined the effectiveness of a health literacy intervention

N = 1208

13–17 y.

Mean age 14.8 y.

Over 60% females

Hispanic/Latino 33.7%

White 22.1%

Black 13.2%

Asian 7.9%

Other 1.9%

Multi-Ethnic 20.4%

Healthcare setting

(1) Patient-provider encounter;

(2) Interacting with the healthcare system;

(3) Rights and responsibilities;

(4) Health information seeking;

(5) Confidence in health information from personal source;

(6) Confidence in health information from media source

24 items (provided)

(1) 4 items

(2) 5 items

(3) 7 items

(4) 3 items

(5) 3 items

(6) 3 items

5 point Likert scale paper and pencil or online

n.a.

Internal

consistency:

α = .834

Corresponding factors (related to six dimension)

1: α = .815

2: α = .803

3: α = .827

4: α = .638

5: α = .834

6: α = .709

n.a.

13

Röthlin et al., 2013 [53]

Austria

German

HLS-EU-Q47 and -Q16

Existing tool

Subjective measurement / self-report

To apply and validate the HLS-EU instrument in the Austrian youth population

N = 571

15 y.

Female 52.7%

Male 46.8%

No answer 0.5%

Parents born in Austria 84.1%

One parent born in Austria 7%

Not born in Austria 9%

No setting information

Access;

Understand;

Appraise;

Apply

47 items provided including short scale of 16 items

Dichotomous response format (easy and difficult)

Access: 4 items

Understand: 6 items

Appraise 3 items

Apply: 3 items

n.a.

Internal consistency

α = .90

Healthcare: α = .69

Disease prevention: α = .81

Health promotion: α = .81

Convergent:

HLS-EU-Q4 and:

NVS r = .09

HLS-EU-Q16 and NVS r = .14

Concurrent:

HLS-EU-Q16

r = .82

14

Driessnack et al., 2014 [52]

USA

English

Newest Vital Sign

Existing instrument

Objective measurement / performance based assessment

To explore the feasibility, utility, and validity of using the Newest Vital Sign (NVS) tool to assess health literacy in children

N = 94; N = 47 parent-child-dyads

n = 47 children

7-8y, n = 18 (38%)

9-10y, n = 18 (38%)

11-12y, n = 11 (23%)

Science center

Reading comprehension;

Numeracy

6 items (provided) (all reading and numeracy)

Up to 3 min

Internal consistency

Children α = .71

Parents α = .79

n.a.

15

Naigaga et al., 2015 [54]

Uganda

English and oga

Maternal Health Literacy Scale (MaHeLi scale)

Short form of existing instrument

Subjective measurement/self-report

To use a short form of the validated MaHeLi scale in Uganda

N = 384 adolescent pregnant girls

15–19 y.

49% 15 y.

51% 16–19 y.

62% at least level 5 education

38% = < level 5 education

Healthcare setting

Appraisal of health information (AHI);

Competence and coping (CCS)

12 items (provided);

Short version of MaHeLi scale

n.a.

n.a.

n.a.