|Main categories: Illness trajectory & Impacting factors|
|Unhelpful medically-related external factors||Three months untreated||
The doctor threw me out, wouldn’t have me as her patient.
An enigma to the GP.
|Not many [health care providers] have knowledge of this||I did not get the [PIFS] diagnosis until March [4 years after the outbreak]||Yes, it is difficult to access help, causes very much frustration|
|I did not know what it was||I have made wrong choices by trying to keep working||I did not define myself as sick before I could not get out bed||That is obviously what I am still doing [over-estimating my own physical capacity]||I see how I go back to the old pattern again when I start feeling better|
|Helpful medically-related external factors||I received a course of antibiotics||Yes, when I got diagnosed [by the neurologist] it was actually a relief||I think some of the sessions [of the education course] were very helpful|
|[It] just turned when I stared teaming with myself||I have become good at saying no and setting limits||Now, when I have regained some energy, I will contact [friends] again|