Pre decision-aid | Post decision-aid | P-value for difference between groups | ||||
---|---|---|---|---|---|---|
Response options | Gist group (n = 512) N (%) | Extended group (n = 519) N (%) | Gist group (n = 512) N (%) | Extended group (n = 519) N (%) | ||
Knowledge | ||||||
Summary scores | ||||||
Knowledge about ovarian cancer (range = 0–10), mean (SD) | 5.75 (1.63) | 5.66 (1.48) | 6.79 (1.84) | 6.76 (1.81) | t(1029) = 0.30, p = 0.766 | |
Knowledge about PROMISE (range = 0–6), mean (SD) | n/a | n/a | 4.02 (1.73) | 3.92 (1.70) | t(1029) = 0.87, p = 0.386 | |
Individual item scores | ||||||
Knowledge about ovarian cancer: | ||||||
The average risk of a woman developing ovarian cancer in her lifetime is (1 in 50) | 1) 1 in 8 2) 1 in 50 3) 1 in 1000 | 141 (27.5) 280 (54.7) 91 (17.8) | 144 (27.7) 256 (49.3) 119 (22.9) | 117 (22.9) 347 (67.8) 48 (9.4) | 105 (20.2) 346 (66.7) 68 (13.1) | |
Ovarian cancer mostly affects older women (True) | True Not true Not sure | 106 (20.7) 320 (62.5) 86 (16.8) | 85 (16.4) 330 (63.6) 104 (20.0) | 246 (48.0) 203 (39.6) 63 (12.3) | 211 (40.7) 238 (45.9) 70 (13.5) | |
Ovarian cancer can easily be found early with an ultrasound scan (Not true) | True Not true Not sure | 238 (46.5) 89 (17.4) 185 (36.1) | 233 (44.9) 85 (16.4) 201 (38.7) | 211 (41.2) 124 (24.2) 177 (34.6) | 210 (40.5) 147 (28.3) 162 (31.2) | |
There are some factors which increase the risk of ovarian cancer. Please tick all that you think apply: | ||||||
Being over 50 years old (Yes) | Yes No | 222 (43.4) 290 (56.6) | 213 (41.0) 306 (59.0) | 340 (66.4) 172 (33.6) | 322 (62.0) 197 (38.0) | |
Being overweight (Yes) | Yes No | 270 (52.7) 242 (47.3) | 285 (54.9) 234 (45.1) | 342 (66.8) 170 (33.2) | 356 (68.6) 163 (31.4) | |
Smoking (Yes) | Yes No | 293 (57.2) 219 (42.8) | 294 (56.6) 225 (43.4) | 344 (67.2) 168 (32.8) | 351 (67.6) 168 (32.4) | |
Family history (Yes) | Yes No | 420 (82.0) 92 (18.0) | 436 (84.0) 83 (16.0) | 413 (80.7) 99 (19.3) | 445 (85.7) 74 (14.3) | |
Taking the pill (No) | Yes No | 197 (38.5) 315 (61.5) | 197 (38.0) 322 (62.0) | 150 (29.3) 362 (70.7) | 162 (31.2) 357 (68.8) | |
Having children (No) | Yes No | 67 (13.1) 445 (86.9) | 58 (11.2) 461 (88.8) | 53 (10.4) 459 (89.6) | 50 (9.6) 469 (90.4) | |
Breastfeeding (No) | Yes No | 9 (1.8) 503 (98.2) | 16 (3.1) 503 (96.9) | 12 (2.3) 500 (97.7) | 16 (3.1) 503 (96.9) | |
Knowledge about PROMISE: | ||||||
Genetic testing for ovarian cancer involves giving a blood sample (True) | True Not true Not sure | n/a | n/a | 279 (54.5) 67 (13.1) 166 (32.4) | 282 (54.3) 69 (13.3) 168 (32.4) | |
PROMISE uses genetic information to estimate the risk of developing ovarian cancer (True) | True Not true Not sure | n/a | n/a | 360 (70.3) 29 (5.7) 123 (24.0) | 357 (68.8) 21 (4.0) 141 (27.2) | |
Learning about personal risk of ovarian cancer may affect other family members (True) | True Not true Not sure | n/a | n/a | 383 (74.8) 43 (8.4) 86 (16.8) | 392 (75.5) 56 (10.8) 71 (13.7) | |
Most women who take part in PROMISE will learn that they are at high risk of ovarian cancer (Not true) | True Not true Not sure | n/a | n/a | 61 (11.9) 336 (65.6) 115 (22.5) | 83 (16.0) 320 (61.7) 116 (22.4) | |
There is nothing that women who are at high risk of ovarian cancer can do to reduce their risk of ovarian cancer (Not true) | True Not true Not sure | n/a | n/a | 53 (10.4) 337 (65.8) 122 (23.8) | 56 (10.8) 313 (60.3) 150 (28.9) | |
Women who take part in PROMISE will get some information about their risk of breast cancer (True) | True Not true Not sure | n/a | n/a | 361 (70.5) 15 (2.9) 136 (26.6) | 372 (71.7) 27 (5.2) 120 (23.1) | |
Attitudes towards taking part in PROMISE | ||||||
For me, taking part in PROMISE would be: | ||||||
A bad thing (1) not a bad thing (5) | n/a | n/a | 3.93 (0.91) | 3.89 (0.86) | ||
Not beneficial (1) beneficial (5) | n/a | n/a | 3.89 (0.94) | 3.84 (0.90) | ||
Not a good thing (1) a good thing (5) | n/a | n/a | 3.93 (0.91) | 3.89 (0.88) | ||
Not worthwhile (1) worthwhile (5) | n/a | n/a | 3.91 (0.95) | 3.88 (0.93) | ||
Not important (1) important (5) | n/a | n/a | 3.82 (1.0) | 3.82 (0.94) | ||
Harmful (1) not harmful (5) | n/a | n/a | 4.04 (0.88) | 4.03 (0.86) | ||
Total mean (range = 1–5) (SD) | n/a | n/a | 3.92 (0.83) | 3.89 (0.79) | t(1029) = 0.60, p = 0.550 | |
Intention to participate in PROMISE | ||||||
Definitely not | n/a | n/a | 18 (3.5%) | 20 (3.9%) | ||
Probably not | n/a | n/a | 114 (22.3%) | 114 (22.0%) | ||
Yes probably | n/a | n/a | 255 (49.8%) | 267 (51.4%) | ||
Yes definitely | n/a | n/a | 125 (24.4%) | 118 (22.7%) | ||
Mean score (range = 1–4) (SD) | n/a | n/a | 2.95 (0.78%) | 2.93 (0.77%) | t(1029) = 0.43, p = 0.671 |