Health status
|
Child’s health status not excellent or very goodb
|
93 (39%)
|
Parent worries about child’s health more than other people
|
198 (84%)
|
Parent has emotional worry or concern about child’s physical health
|
182 (77%)
|
PedsQL total score
|
89.0 ± 13.2
|
Access to healthcare
|
Child has no PCP
|
150 (63%)
|
Child has no usual source of preventive care
|
95 (40%)
|
Never/sometimes gets immediate care from PCPc
|
22 (21%)
|
Child has no usual source of sick care
|
41 (17%)
|
Different source of sick care and preventive care
|
127 (54%)
|
Has no 24-h telephone coverage for sick care
|
208 (88%)
|
Usual source of care has no night or weekend office hours
|
205 (87%)
|
Never/sometimes can obtain after-hours telephone help or adviced
|
12 (48%)
|
Unmet healthcare needs
|
Delayed or didn’t get needed healthcare in past year
|
170 (72%)
|
Did not receive all needed preventive caree
|
88 (52%)
|
Did not receive all needed acute caref
|
105 (81%)
|
Did not receive all needed specialty careg
|
31 (58%)
|
Did not receive all needed dental careh
|
117 (61%)
|
Did not receive all needed prescription medicationsi
|
24 (18%)
|
Did not receive all needed medical supplies or equipmentj
|
30 (49%)
|
Use of health servicesk
|
Doctor visits in past year
|
3.3 ± 0.2
|
Preventive-care visits in past year
|
1.0 ± 0.1
|
Sick visits in past year
|
1.8 ± 0.2
|
ED visits in past year
|
0.9 ± 0.2
|
Hospital stays in past year
|
0.1 ± 0.1
|
Quality of pediatric care (scale of 1–10, where 10 = best)l
|
Rating of overall quality of child’s well-child visit
|
8.3 ± 2.0
|
Rating of child’s PCP
|
8.9 ± 1.9
|
Rating of child’s acute care
|
8.6 ± 2.1
|
Rating of child’s specialty care
|
8.2 ± 3.5
|
Parental satisfaction with care
|
Doctor never/sometimes takes time to understand child’s specific needs
|
52 (22%)
|
Doctor never/sometimes respects you are expert on your child
|
37 (16%)
|
Doctor never/sometimes asks how you are feeling as parent
|
97 (41%)
|
Doctor never/sometimes understands how you prefer to raise child
|
68 (29%)
|
Doctor did not spend enough time with child
|
36 (15%)
|
Did not ask all questions I wanted to ask
|
30 (15%)
|
Would not recommend child’s healthcare provider to friends
|
55 (23%)
|
Parental out-of-pocket costs of pediatric carek
|
Out-of-pocket cost per doctor visit
|
$140 ± 35.7
|
Out-of-pocket cost per preventive-care visit
|
$46 ± 13.5
|
Out-of-pocket cost per sick visit
|
$195 ± 56.1
|
Out-of-pocket cost per ED visit
|
$434 ± 125
|
Out-of-pocket cost per hospital stay
|
$741 ± 476
|
Parental reported financial burden
|
Need additional income to cover child’s medical expenses
|
102 (43%)
|
Child’s health caused financial problem for family
|
84 (36%)
|
Family cut down on work hours to obtain healthcare for child
|
51 (22%)
|
Caregiver stopped working because of child’s health
|
24 (10%)
|
Missed school and work days due to child’s healthk
|
Missed school days in past year
|
3.6 ± 0.4
|
Missed work days in past year due to child’s illness
|
1.6 ± 0.3
|
Wage loss in past year due to missed work days
|
$336 ± 77
|
Other costs in past year related to taking care of sick child
|
$167 ± 82
|