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Table 1 Summary of measures included and point of data collection

From: Protocol for a randomized controlled trial testing the impact of feedback on familial risk of chronic diseases on family-level intentions to participate in preventive lifestyle behaviors

Families, food and eating survey Baseline Endpoint Adult Child
Section 1: Cultural identity and background (7 items)
 Country of origin and parents’ origin, language spoken at home. X   X X
Section 2: Lifestyle (current behavior determined from previous week)1 (13 items)
 Smoking status X X X  
 Vigorous Physical Activity:
  • Days per week X X X X
  • Hours/Minutes per day X X X X
 Moderate Physical Activity:
  • Days per week X X X X
  • Hours/Minutes per day X X X X
 Sedentary Behavior:
  • Hours/Minutes per day on a weekday X X X X
  • Hours/Minutes per day on the weekend X X X X
  • Sedentary activities (Children only) – hours per day on a weekday X X   X
  • Sedentary activities (Children only) – hours per day on a weekend X X   X
 Family physical activity
  • Days per week X X X X
  • Hours/Minutes per day X X X X
 Serves of fruit per day averaged over previous week X X X X
 Serves of vegetables per day averaged over previous week X X X X
 Number of visits to franchised fast food restaurants in the previous week X X X X
 Serves of high fat and/or high sugar “snacks” per day averaged over previous week X X X X
 Alcohol consumption
  • Days on which alcohol consumed in past week X X X  
  • Average number of standard drinks on drinking days X X X  
Section 3: Intended Lifestyle Changes (Minimum 1 item, Maximum 6 items)2
Considering Lifestyle change (yes or no) X X X X
Areas: Fruit and Vegetable consumption; Physical Activity; X X X X
Additional areas: Fibre consumption; Alcohol consumption; Smoking X X X  
If yes, identified each area of change and confidence in capacity to change (Self efficacy for Behavior Change) on a 7 point rating scale where 1 is Not at all Confident, 4 is Moderately Confident and 7 is Very Confident. X X X X
Indicate any areas where lifestyle changes have been made in the last 6 months   X X X
Section 4: Food Attitudes (21 items)# (some excluded for children; 16 items)
 Food Life Questionnaire Short Form [53] rated on a 7 point rating scale where 1 is Strongly Disagree and 7 is Strongly Agree X X X X
Section 5: Disease Risk (10 items)
 Likelihood of talking to doctor about chronic diseases risk in the next 6 months X X X  
 Likelihood of talking to family about chronic diseases risk in the next 6 months X X X  
 Ratings of perceived lifetime risk for colorectal cancer, breast cancer, heart disease and diabetes X X X  
 All rated on a 7 point rating scale where 1 is Not at all Likely and 7 is Extremely Likely. (Don’t Know and Not Applicable provided for each specific disease ratings)     
 Perceived contribution of lifestyle factors to disease risk (includes eating habits, alcohol consumption, physical inactivity, genetic factors) X X X  
 All rated on a 7 point rating scale where 1 is Not at All and 7 is A Great Deal     
Section 6: Cultural Identity (Italian and Vietnamese participants only)
 Stephenson Multigroup Acculturation Scale (32 items) [54] X   X  
 Ratings of extent of agreement with a series of “I” statements     
 All rated on a 4 point rating scale where 1 is False and 4 is True. Not Applicable also provided.     
Section 6 (or 7): Questions about your own health history (1 item; 4 diseases)
 Categorical response for heart disease, diabetes, colorectal cancer and breast cancer (includes Don’t Know and Age at diagnosis) X   X  
Section 7 (or 8): Questions about your family’s health history (9 items) (used to compile FHHA; adapted from CDC online Family Healthware Tool)
 Categorical response for heart disease, diabetes, colorectal cancer and breast cancer (includes Don’t Know and Age at diagnosis) X   X  
Section 8 (or 9): Demographics (12 items)
 Age, gender, height, weight, number of people living in the home, number of children (adults) or siblings (children), adults only: marital status, income (Endpoint only), education (Endpoint only), health insurance (categorical) X X X X
Social and Cultural Capital (6 items/domains)
 Newspaper most often read (categorical) X   X  
 Television station watched most often (categorical) X   X X
 Shops from which food is purchased and frequency, choice of 4 including “Other” X   X  
 All rated on a 5 point rating scale where 1 is Never and 5 is all the time     
 Recreational activities, choice of 6 X   X  
 All rated on a 5 point rating scale where 1 is Never and 5 is daily     
 Frequency of direct contact with three groups of people; friend, workmates and neighbors X   X  
 All rated on a 6 point rating scale where 1 is Almost every day and 6 is Don’t have any     
 Membership in any of 4 different organizations; religious, recreational, cultural or educational, and “other” community-based (categorical) X   X  
Endpoint – Additional Measures
Section 4: Beliefs and Attitudes to Life (28 items)
 Multidimensional Health Locus of Control Scale (18 items) [55]   X X  
 Life Orientation Test – Revised (10 items) [56]   X X  
 All rated on a 5 point rating scale where 1 is Strongly Disagree and 5 is Strongly Agree     
 Intervention group only – evaluation of the extent to which Families SHARE information was shared amongst family members   X X  
Section 5: Disease Risk (15 items)
 Conversations about chronic diseases in the past 6 months with doctor, family member, friends, others X X X  
 Ratings of perceived lifetime risk for colorectal cancer, breast cancer, heart disease and diabetes of child X X X  
 Rated on a 7 point rating scale where 1 is Not at all Likely and 7 is Extremely Likely.     
 (Don’t Know and Not Applicable provided for each specific disease ratings)     
 Participation in screening for each of the 4 chronic diseases   X X  
Section 6: Your Family
 Box providing scope for enumeration of people who are considered as family members   X X X
Section 7: Family Health History Evaluation INTERVENTION GROUP ONLY (3items; all categorical responding)
 Ability to assess disease risk   X X  
 Sharing of FHHA information   X X  
 Was the FHHA updated after receipt?   X X  
  1. 1Section 1 in Endpoint Survey
  2. 2Section 2 in Endpoint Survey