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Table 1 Summary of measures included and point of data collection

From: Protocol for a randomized controlled trial testing the impact of feedback on familial risk of chronic diseases on family-level intentions to participate in preventive lifestyle behaviors

Families, food and eating survey

Baseline

Endpoint

Adult

Child

Section 1: Cultural identity and background (7 items)

 Country of origin and parents’ origin, language spoken at home.

X

 

X

X

Section 2: Lifestyle (current behavior determined from previous week)1 (13 items)

 Smoking status

X

X

X

 

 Vigorous Physical Activity:

  • Days per week

X

X

X

X

  • Hours/Minutes per day

X

X

X

X

 Moderate Physical Activity:

  • Days per week

X

X

X

X

  • Hours/Minutes per day

X

X

X

X

 Sedentary Behavior:

  • Hours/Minutes per day on a weekday

X

X

X

X

  • Hours/Minutes per day on the weekend

X

X

X

X

  • Sedentary activities (Children only) – hours per day on a weekday

X

X

 

X

  • Sedentary activities (Children only) – hours per day on a weekend

X

X

 

X

 Family physical activity

  • Days per week

X

X

X

X

  • Hours/Minutes per day

X

X

X

X

 Serves of fruit per day averaged over previous week

X

X

X

X

 Serves of vegetables per day averaged over previous week

X

X

X

X

 Number of visits to franchised fast food restaurants in the previous week

X

X

X

X

 Serves of high fat and/or high sugar “snacks” per day averaged over previous week

X

X

X

X

 Alcohol consumption

  • Days on which alcohol consumed in past week

X

X

X

 

  • Average number of standard drinks on drinking days

X

X

X

 

Section 3: Intended Lifestyle Changes (Minimum 1 item, Maximum 6 items)2

Considering Lifestyle change (yes or no)

X

X

X

X

Areas: Fruit and Vegetable consumption; Physical Activity;

X

X

X

X

Additional areas: Fibre consumption; Alcohol consumption; Smoking

X

X

X

 

If yes, identified each area of change and confidence in capacity to change (Self efficacy for Behavior Change) on a 7 point rating scale where 1 is Not at all Confident, 4 is Moderately Confident and 7 is Very Confident.

X

X

X

X

Indicate any areas where lifestyle changes have been made in the last 6 months

 

X

X

X

Section 4: Food Attitudes (21 items)# (some excluded for children; 16 items)

 Food Life Questionnaire Short Form [53] rated on a 7 point rating scale where 1 is Strongly Disagree and 7 is Strongly Agree

X

X

X

X

Section 5: Disease Risk (10 items)

 Likelihood of talking to doctor about chronic diseases risk in the next 6 months

X

X

X

 

 Likelihood of talking to family about chronic diseases risk in the next 6 months

X

X

X

 

 Ratings of perceived lifetime risk for colorectal cancer, breast cancer, heart disease and diabetes

X

X

X

 

 All rated on a 7 point rating scale where 1 is Not at all Likely and 7 is Extremely Likely. (Don’t Know and Not Applicable provided for each specific disease ratings)

    

 Perceived contribution of lifestyle factors to disease risk (includes eating habits, alcohol consumption, physical inactivity, genetic factors)

X

X

X

 

 All rated on a 7 point rating scale where 1 is Not at All and 7 is A Great Deal

    

Section 6: Cultural Identity (Italian and Vietnamese participants only)

 Stephenson Multigroup Acculturation Scale (32 items) [54]

X

 

X

 

 Ratings of extent of agreement with a series of “I” statements

    

 All rated on a 4 point rating scale where 1 is False and 4 is True. Not Applicable also provided.

    

Section 6 (or 7): Questions about your own health history (1 item; 4 diseases)

 Categorical response for heart disease, diabetes, colorectal cancer and breast cancer (includes Don’t Know and Age at diagnosis)

X

 

X

 

Section 7 (or 8): Questions about your family’s health history (9 items) (used to compile FHHA; adapted from CDC online Family Healthware Tool)

 Categorical response for heart disease, diabetes, colorectal cancer and breast cancer (includes Don’t Know and Age at diagnosis)

X

 

X

 

Section 8 (or 9): Demographics (12 items)

 Age, gender, height, weight, number of people living in the home, number of children (adults) or siblings (children), adults only: marital status, income (Endpoint only), education (Endpoint only), health insurance (categorical)

X

X

X

X

Social and Cultural Capital (6 items/domains)

 Newspaper most often read (categorical)

X

 

X

 

 Television station watched most often (categorical)

X

 

X

X

 Shops from which food is purchased and frequency, choice of 4 including “Other”

X

 

X

 

 All rated on a 5 point rating scale where 1 is Never and 5 is all the time

    

 Recreational activities, choice of 6

X

 

X

 

 All rated on a 5 point rating scale where 1 is Never and 5 is daily

    

 Frequency of direct contact with three groups of people; friend, workmates and neighbors

X

 

X

 

 All rated on a 6 point rating scale where 1 is Almost every day and 6 is Don’t have any

    

 Membership in any of 4 different organizations; religious, recreational, cultural or educational, and “other” community-based (categorical)

X

 

X

 

Endpoint – Additional Measures

Section 4: Beliefs and Attitudes to Life (28 items)

 Multidimensional Health Locus of Control Scale (18 items) [55]

 

X

X

 

 Life Orientation Test – Revised (10 items) [56]

 

X

X

 

 All rated on a 5 point rating scale where 1 is Strongly Disagree and 5 is Strongly Agree

    

 Intervention group only – evaluation of the extent to which Families SHARE information was shared amongst family members

 

X

X

 

Section 5: Disease Risk (15 items)

 Conversations about chronic diseases in the past 6 months with doctor, family member, friends, others

X

X

X

 

 Ratings of perceived lifetime risk for colorectal cancer, breast cancer, heart disease and diabetes of child

X

X

X

 

 Rated on a 7 point rating scale where 1 is Not at all Likely and 7 is Extremely Likely.

    

 (Don’t Know and Not Applicable provided for each specific disease ratings)

    

 Participation in screening for each of the 4 chronic diseases

 

X

X

 

Section 6: Your Family

 Box providing scope for enumeration of people who are considered as family members

 

X

X

X

Section 7: Family Health History Evaluation INTERVENTION GROUP ONLY (3items; all categorical responding)

 Ability to assess disease risk

 

X

X

 

 Sharing of FHHA information

 

X

X

 

 Was the FHHA updated after receipt?

 

X

X

 
  1. 1Section 1 in Endpoint Survey
  2. 2Section 2 in Endpoint Survey