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Table 2 Average scores for completeness, timeliness, and accuracy overall and by program case-finding methodology

From: Development and implementation of the first national data quality standards for population-based birth defects surveillance programs in the United States

Data Quality (DQ) Performance Measures Overall - All Programs, n = 43 Programs with Active Case-finding Methodology, n = 17 Programs with Passive Case-finding Methodology, n = 26
DQ1: Completeness DQ1.1 Types of data sources used systematically and routinely to identify potential cases at a population-based level 2.2 2.5 1.9
DQ1.2 Birth defects included using standard National Birth Defects Prevention Network case definitions a 2.4 2.4 2.4
DQ1.3 Pregnancy outcomes included 2.1 2.7 1.8
DQ1.4 Systematic and routine identification of cases during ascertainment period (age of diagnosis) 2.6 2.5 2.7
DQ1.5 Data elements collected a 1.8 2.0 1.6
Overall Completeness 2.2 2.4 2.1
DQ2: Timeliness DQ2.1 Time of case data completion for NBDPN “core” list 1.8 1.7 1.9
DQ2.2 Time of case data completion for NBDPN “recommended” list 1.5 1.4 1.5
Overall Timeliness 1.6 1.5 1.7
DQ3: Accuracy DQ3.1 Data quality procedures for verification of case diagnosis 2.3 2.9 1.9
DQ3.2 Scope of birth defects verified 1.9 2.6 1.5
DQ3.3 Level of expertise for individuals who perform case diagnosis verification 1.9 2.5 1.5
DQ3.4 Database quality assurance process 1.7 2.1 1.5
Overall Accuracy 2.0 2.5 1.6
  Overall (All Measures) 2.0 2.3 1.8
  1. aNBDPN list of birth defects and data elements are available at www.nbdpn.org