TY - JOUR AU - Giordano, P. C. AU - Harteveld, C. L. H. PY - 1998 DA - 1998// TI - Hemoglobinopathieën in Nederland. De rol van de huisarts bij dragerschapsdiagnostiek en preventie [Hemoglobinopathies in the Netherlands. Role of the general practitioner in diagnosing carriers and prevention] JO - Huisarts en Wetenschap VL - 41 ID - Giordano1998 ER - TY - JOUR AU - Giordano, P. C. AU - Breuning, M. H. PY - 2000 DA - 2000// TI - [From gene to disease; from hemoglobin genes to thalassemia and sickle cell anemia] JO - Ned Tijdschr Geneeskd VL - 144 ID - Giordano2000 ER - TY - JOUR AU - Giordano, P. C. AU - Bouva, M. J. AU - Harteveld, C. L. PY - 2004 DA - 2004// TI - A confidential inquiry estimating the number of patients affected with sickle cell disease and thalassemia major confirms the need for a prevention strategy in the Netherlands JO - Hemoglobin VL - 28 UR - https://doi.org/10.1081/HEM-200037735 DO - 10.1081/HEM-200037735 ID - Giordano2004 ER - TY - STD TI - TNO Kwaliteit van Leven: Evaluatie van neonatale hielprik screening bij kinderen geboren in 2007 [Evaluation of neonatal heel prick screening in children born in 2007]. 2008, [http://www.rivm.nl/pns/Images/TNO%20Evaluatie%20hielprik%202008_tcm95-56923.pdf] UR - http://www.rivm.nl/pns/Images/TNO%20Evaluatie%20hielprik%202008_tcm95-56923.pdf ID - ref4 ER - TY - JOUR AU - Modell, B. AU - Darlison, M. PY - 2008 DA - 2008// TI - Global epidemiology of haemoglobin disorders and derived service indicators JO - Bull World Health Organ VL - 86 UR - https://doi.org/10.2471/BLT.06.036673 DO - 10.2471/BLT.06.036673 ID - Modell2008 ER - TY - CHAP PY - 2006 DA - 2006// BT - World Health Assembly 59.20 Resolution on sickle cell anemia ID - ref6 ER - TY - JOUR AU - Henneman, L. AU - Bramsen, I. AU - Ploeg, H. M. v. a. n. d. e. r. AU - ten Kate, L. P. PY - 2002 DA - 2002// TI - Preconception cystic fibrosis carrier couple screening: impact, understanding, and satisfaction JO - Genet Test VL - 6 UR - https://doi.org/10.1089/109065702761403351 DO - 10.1089/109065702761403351 ID - Henneman2002 ER - TY - JOUR AU - Poppelaars, F. A. AU - van der, W. G. AU - Braspenning, J. C. AU - Cornel, M. C. AU - Henneman, L. AU - Langendam, M. W. AU - ten Kate, L. P. PY - 2003 DA - 2003// TI - Possibilities and barriers in the implementation of a preconceptional screening programme for cystic fibrosis carriers: a focus group study JO - Public Health VL - 117 UR - https://doi.org/10.1016/S0033-3506(03)00136-7 DO - 10.1016/S0033-3506(03)00136-7 ID - Poppelaars2003 ER - TY - JOUR AU - Weijers-Poppelaars, F. A. AU - Wildhagen, M. F. AU - Henneman, L. AU - Cornel, M. C. AU - Kate, L. P. PY - 2005 DA - 2005// TI - Preconception cystic fibrosis carrier screening: costs and consequences JO - Genet Test VL - 9 UR - https://doi.org/10.1089/gte.2005.9.158 DO - 10.1089/gte.2005.9.158 ID - Weijers-Poppelaars2005 ER - TY - JOUR AU - Lakeman, P. AU - Henneman, L. AU - Bezemer, P. D. AU - Cornel, M. C. AU - ten Kate, L. P. PY - 2006 DA - 2006// TI - Developing and optimizing a decisional instrument using self-reported ancestry for carrier screening in a multi-ethnic society JO - Genet Med VL - 8 UR - https://doi.org/10.1097/01.gim.0000232461.11153.9a DO - 10.1097/01.gim.0000232461.11153.9a ID - Lakeman2006 ER - TY - BOOK AU - Lakeman, P. PY - 2008 DA - 2008// TI - Preconceptional carrier couple screening for cystic fibrosis and hemoglobinopathies. PhD ID - Lakeman2008 ER - TY - JOUR AU - Giordano, P. C. AU - Plancke, A. AU - Van Meir, C. A. AU - Janssen, C. A. AU - Kok, P. J. AU - Rooijen-Nijdam, I. H. AU - Tanis, B. C. AU - van Huisseling, J. C. AU - Versteegh, F. G. PY - 2006 DA - 2006// TI - Carrier diagnostics and prevention of hemoglobinopathies in early pregnancy in The Netherlands: a pilot study JO - Prenat Diagn VL - 26 UR - https://doi.org/10.1002/pd.1490 DO - 10.1002/pd.1490 ID - Giordano2006 ER - TY - JOUR AU - Achterbergh, R. AU - Lakeman, P. AU - Stemerding, D. AU - Moors, E. H. AU - Cornel, M. C. PY - 2007 DA - 2007// TI - Implementation of preconceptional carrier screening for cystic fibrosis and haemoglobinopathies: a sociotechnical analysis JO - Health Policy VL - 83 UR - https://doi.org/10.1016/j.healthpol.2007.02.007 DO - 10.1016/j.healthpol.2007.02.007 ID - Achterbergh2007 ER - TY - JOUR AU - Giordano, P. C. PY - 2009 DA - 2009// TI - Starting neonatal screening for haemoglobinopathies in The Netherlands JO - J Clin Pathol VL - 62 UR - https://doi.org/10.1136/jcp.2008.058826 DO - 10.1136/jcp.2008.058826 ID - Giordano2009 ER - TY - CHAP PY - 2005 DA - 2005// BT - Neonatal Screening PB - Health Council of the Netherlands. Publication no. 2005/11 CY - The Hague ID - ref15 ER - TY - STD TI - ACOG Practice Bulletin No. 78: hemoglobinopathies in pregnancy. Obstet Gynecol. 2007, 109: 229-237. ID - ref16 ER - TY - JOUR AU - Dyson, S. M. AU - Culley, L. AU - Gill, C. AU - Hubbard, S. AU - Kennefick, A. AU - Morris, P. AU - Rees, D. AU - Sutton, F. AU - Squire, P. PY - 2006 DA - 2006// TI - Ethnicity questions and antenatal screening for sickle cell/thalassaemia [EQUANS] in England: a randomised controlled trial of two questionnaires JO - Ethn Health VL - 11 UR - https://doi.org/10.1080/13557850500460348 DO - 10.1080/13557850500460348 ID - Dyson2006 ER - TY - JOUR AU - Talan, D. AU - van Elderen, T. AU - Hoogeboom, J. PY - 2004 DA - 2004// TI - Ongelijk verdeeld: migranten vragen minder én ander klinisch genetisch advies [Unequally divided: migrants request less as well as different clinical genetic advice] JO - Medisch Contact VL - 59 ID - Talan2004 ER - TY - JOUR PY - 2003 DA - 2003// TI - NHG Standaard Anemie (rectificatie) [Standard Practice for Anaemia] JO - Huisarts en Wetenschap VL - 46 ID - ref19 ER - TY - STD TI - Municipality of Amsterdam, Department of Research and Statistics. 2.1.11 Bevolking naar leeftijdsgroepen en herkomstgroepering, 1 januari 2007. [Population according to age group and provenance, Jan. 1 2007] [Accessed April 20, 2009], [http://www.os.amsterdam.nl/tabel/3967/] UR - http://www.os.amsterdam.nl/tabel/3967/ ID - ref20 ER - TY - CHAP PY - 2001 DA - 2001// BT - Evaluatie diabetesproject Hindoestanen. [Evaluation of diabetes project for Hindustanis] PB - Public Health Service CY - Amsterdam ID - ref21 ER - TY - CHAP PY - 2002 DA - 2002// BT - Procesevaluatie project voorlichting hart- en vaatziekten Hindoestanen. Een cultuurspecifieke aanpak. [Process evaluation about information for Hindustanis about heart and vascular disease] PB - Public Health Service CY - Amsterdam ID - ref22 ER - TY - BOOK AU - Ajzen, I. PY - 1988 DA - 1988// TI - Attitudes, personality, and behavior PB - Open University Press CY - Milton Keynes ID - Ajzen1988 ER - TY - STD TI - Erfocentrum. Pilot project hemoglobinopathieën. Erfocentrum. 2006, [Accessed April 20, 2009], [http://www.erfelijkebloedarmoede.nl] UR - http://www.erfelijkebloedarmoede.nl ID - ref24 ER - TY - JOUR AU - Smets, E. M. AU - Pieterse, A. H. AU - Aalfs, C. M. AU - Ausems, M. G. AU - van Dulmen, A. M. PY - 2006 DA - 2006// TI - The perceived personal control (PPC) questionnaire as an outcome of genetic counseling: reliability and validity of the instrument JO - Am J Med Genet A VL - 140 UR - https://doi.org/10.1002/ajmg.a.31185 DO - 10.1002/ajmg.a.31185 ID - Smets2006 ER - TY - JOUR AU - Lakeman, P. AU - Plass, A. M. AU - Henneman, L. AU - Bezemer, P. D. AU - Cornel, M. C. AU - ten Kate, L. P. PY - 2008 DA - 2008// TI - Three-month follow-up of Western and non-Western participants in a study on preconceptional ancestry-based carrier couple screening for cystic fibrosis and hemoglobinopathies in the Netherlands JO - Genet Med VL - 10 UR - https://doi.org/10.1097/GIM.0b013e318188d04c DO - 10.1097/GIM.0b013e318188d04c ID - Lakeman2008 ER - TY - JOUR AU - Orbell, S. AU - Hagger, M. PY - 2006 DA - 2006// TI - "When no means no": can reactance augment the theory of planned behavior? JO - Health Psychol VL - 25 UR - https://doi.org/10.1037/0278-6133.25.5.586 DO - 10.1037/0278-6133.25.5.586 ID - Orbell2006 ER - TY - JOUR AU - Thomas, P. AU - Oni, L. AU - Alli, M. AU - St Hilaire, J. AU - Smith, A. AU - Leavey, C. AU - Banarsee, R. PY - 2005 DA - 2005// TI - Antenatal screening for haemoglobinopathies in primary care: a whole system participatory action research project JO - Br J Gen Pract VL - 55 ID - Thomas2005 ER - TY - STD TI - The pre-publication history for this paper can be accessed here:http://www.biomedcentral.com/1471-2458/9/338/prepub UR - http://www.biomedcentral.com/1471-2458/9/338/prepub ID - ref29 ER -