Skip to main content

Advertisement

Table 6 Percentage of participants with disagreements between physicians reported medical data and self-response in DSD questionnaires

From: Clinical evaluation study of the German network of disorders of sex development (DSD)/intersexuality: study design, description of the study population, and data quality

Compared items Disagreement
  Number %
Current height (adolescents/adults, deviation > 5 cm) 3 1.8
Weight (adolescents/adults, deviation > 5 kg 8 4.7
Mode of delivery 9 2.0
Medication during pregnancy 43 9.8
Week of gestation at birth 87 19.8
Length at birth, deviation > 4 cm 8 1.8
Birth weight, deviation > 400 g 6 1.4
Age at the time of presumptive diagnosis   
- deviation ≥ 3 months 43 9.8
- deviation ≥ 6 months 34 7.8
- deviation ≥ 12 months 19 4.4
- deviation ≥ 24 months 13 3.0
- deviation ≥ 48 months 7 1.6
Signs and symptoms leading to the suspected diagnosis of DSD (varying for different symptoms) 2 – 89 0.5 – 20.3
Karyotype 36 8.2
Current diagnosis 48 10.9
Number of operations (by adolescents) 13 21.0
Surgical treatment 15 3.4
Type of the surgical treatment (varying for treatments) 3 – 67 0.7 – 15.3
Previous hormone therapy 96 21.9
Current hormone therapy 35 7.8