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Table 6 Percentage of participants with disagreements between physicians reported medical data and self-response in DSD questionnaires
| Compared items | Disagreement | |
|---|---|---|
| Number | % | |
| Current height (adolescents/adults, deviation > 5 cm) | 3 | 1.8 |
| Weight (adolescents/adults, deviation > 5 kg | 8 | 4.7 |
| Mode of delivery | 9 | 2.0 |
| Medication during pregnancy | 43 | 9.8 |
| Week of gestation at birth | 87 | 19.8 |
| Length at birth, deviation > 4 cm | 8 | 1.8 |
| Birth weight, deviation > 400 g | 6 | 1.4 |
| Age at the time of presumptive diagnosis | ||
| - deviation ≥ 3 months | 43 | 9.8 |
| - deviation ≥ 6 months | 34 | 7.8 |
| - deviation ≥ 12 months | 19 | 4.4 |
| - deviation ≥ 24 months | 13 | 3.0 |
| - deviation ≥ 48 months | 7 | 1.6 |
| Signs and symptoms leading to the suspected diagnosis of DSD (varying for different symptoms) | 2 – 89 | 0.5 – 20.3 |
| Karyotype | 36 | 8.2 |
| Current diagnosis | 48 | 10.9 |
| Number of operations (by adolescents) | 13 | 21.0 |
| Surgical treatment | 15 | 3.4 |
| Type of the surgical treatment (varying for treatments) | 3 – 67 | 0.7 – 15.3 |
| Previous hormone therapy | 96 | 21.9 |
| Current hormone therapy | 35 | 7.8 |
