Table 6 Percentage of participants with disagreements between physicians reported medical data and self-response in DSD questionnaires
Compared items | Disagreement | |
|---|---|---|
Number | % | |
Current height (adolescents/adults, deviation > 5 cm) | 3 | 1.8 |
Weight (adolescents/adults, deviation > 5 kg | 8 | 4.7 |
Mode of delivery | 9 | 2.0 |
Medication during pregnancy | 43 | 9.8 |
Week of gestation at birth | 87 | 19.8 |
Length at birth, deviation > 4 cm | 8 | 1.8 |
Birth weight, deviation > 400 g | 6 | 1.4 |
Age at the time of presumptive diagnosis | ||
- deviation ≥ 3 months | 43 | 9.8 |
- deviation ≥ 6 months | 34 | 7.8 |
- deviation ≥ 12 months | 19 | 4.4 |
- deviation ≥ 24 months | 13 | 3.0 |
- deviation ≥ 48 months | 7 | 1.6 |
Signs and symptoms leading to the suspected diagnosis of DSD (varying for different symptoms) | 2 – 89 | 0.5 – 20.3 |
Karyotype | 36 | 8.2 |
Current diagnosis | 48 | 10.9 |
Number of operations (by adolescents) | 13 | 21.0 |
Surgical treatment | 15 | 3.4 |
Type of the surgical treatment (varying for treatments) | 3 – 67 | 0.7 – 15.3 |
Previous hormone therapy | 96 | 21.9 |
Current hormone therapy | 35 | 7.8 |