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Table 1 Selection and inclusion of participants, by region

From: Assessment of data quality in a multi-centre cross-sectional study of participation and quality of life of children with cerebral palsy

 

Population-based registers

    
 

North England

West Sweden

Northern Ireland

South East France

South West

East Denmark

Central Italy

South West France

All registers

North West Germany

ALL

 

No.

(%)

No.

(%)

No.

(%)

No.

(%)

No.

(%)

No.

(%)

No.

(%)

No.

(%)

  

No.

(%)

No.

(%)

Study population

437

 

290

 

284

 

125

 

127

 

396

 

108

 

117

 

1,884

 

75

 

1,959

 

   Walking ability as recorded by the registry:

                      

Walks unaided

254

 

198

 

187

 

63

 

72

 

246

 

43

 

65

 

1,127

     

Walks using aids

86

 

46

 

45

 

19

 

18

 

57

 

28

 

34

 

333

 

-

 

-

 

Unable to walk

97

 

46

 

52

 

43

 

37

 

92

 

35

 

18

 

420

 

-

 

-

 

Unknown

-

 

-

 

-

 

-

 

-

 

-

 

2

 

-

 

2

 

-

 

-

 

Initial sample*

186

(43)

220

(76)

203

(71)

125

(100)

127

(100)

165

(42)

108

(100)

117

(100)

1,251

 

75

-

1,326

 

   Walking ability as recorded by the registry:

                      

Walks unaided

87

 

128

 

106

 

63

 

72

 

80

 

43

 

65

 

644

     

Walks using aids

50

 

46

 

45

 

19

 

18

 

38

 

28

 

34

 

278

 

-

 

-

 

Unable to walk

49

 

46

 

52

 

43

 

37

 

47

 

35

 

18

 

327

 

-

 

-

 

Unknown

-

 

-

 

-

 

-

 

-

 

-

 

2

 

-

 

2

 

-

 

-

 

Excluded after sampling**

8

(4)

4

(2)

4

(2)

4

(3)

19

(15)

22

(13)

10

(9)

6

(5)

77

(6)

-

 

77

(6)

Dead

0

 

2

 

1

 

1

 

3

 

10

 

3

 

1

 

21

 

-

 

21

 

Misdiagnosed

4

 

1

 

3

 

3

 

4

 

2

 

2

 

0

 

19

 

-

 

19

 

Moved out of area

4

 

1

 

0

 

0

 

5

 

7

 

4

 

4

 

25

 

-

 

25

 

Parental language difficulty

0

 

0

 

0

 

0

 

0

 

3

 

0

 

1

 

4

 

-

 

4

 

Other

0

 

0

 

0

 

0

 

7

 

0

 

1

 

0

 

8

 

-

 

8

 

Final sample**

178

(96)

216

(98)

199

(98)

121

(97)

108

(85)

143

(87)

98

(91)

111

(95)

1,174

(94)

75

(100)

1,249

(94)

Responders

116

(65)

83

(38)

102

(51)

67

(55)

98

(91)

115

(80)

85

(87)

77

(69)

743

(63)

75

(100)

818

(65)

Non-responders

62

(35)

133

(62)

97

(49)

54

(45)

10

(9)

28

(20)

13

(13)

34

(31)

431

(37)

-

 

431

(35)

  1. Percentages are relative to number in: * study population; ** initial sample; † final sample.
  2. a One child was excluded as the walking ability was not recorded.
  3. b Born outwith specified dates of birth and over 6 months outside specified age range on interview date.