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Table 1 Selection and inclusion of participants, by region

From: Assessment of data quality in a multi-centre cross-sectional study of participation and quality of life of children with cerebral palsy

  Population-based registers     
  North England West Sweden Northern Ireland South East France South West East Denmark Central Italy South West France All registers North West Germany ALL
  No. (%) No. (%) No. (%) No. (%) No. (%) No. (%) No. (%) No. (%)    No. (%) No. (%)
Study population 437   290   284   125   127   396   108   117   1,884   75   1,959  
   Walking ability as recorded by the registry:                       
Walks unaided 254   198   187   63   72   246   43   65   1,127      
Walks using aids 86   46   45   19   18   57   28   34   333   -   -  
Unable to walk 97   46   52   43   37   92   35   18   420   -   -  
Unknown -   -   -   -   -   -   2   -   2   -   -  
Initial sample* 186 (43) 220 (76) 203 (71) 125 (100) 127 (100) 165 (42) 108 (100) 117 (100) 1,251   75 - 1,326  
   Walking ability as recorded by the registry:                       
Walks unaided 87   128   106   63   72   80   43   65   644      
Walks using aids 50   46   45   19   18   38   28   34   278   -   -  
Unable to walk 49   46   52   43   37   47   35   18   327   -   -  
Unknown -   -   -   -   -   -   2   -   2   -   -  
Excluded after sampling** 8 (4) 4 (2) 4 (2) 4 (3) 19 (15) 22 (13) 10 (9) 6 (5) 77 (6) -   77 (6)
Dead 0   2   1   1   3   10   3   1   21   -   21  
Misdiagnosed 4   1   3   3   4   2   2   0   19   -   19  
Moved out of area 4   1   0   0   5   7   4   4   25   -   25  
Parental language difficulty 0   0   0   0   0   3   0   1   4   -   4  
Other 0   0   0   0   7   0   1   0   8   -   8  
Final sample** 178 (96) 216 (98) 199 (98) 121 (97) 108 (85) 143 (87) 98 (91) 111 (95) 1,174 (94) 75 (100) 1,249 (94)
Responders 116 (65) 83 (38) 102 (51) 67 (55) 98 (91) 115 (80) 85 (87) 77 (69) 743 (63) 75 (100) 818 (65)
Non-responders 62 (35) 133 (62) 97 (49) 54 (45) 10 (9) 28 (20) 13 (13) 34 (31) 431 (37) -   431 (35)
  1. Percentages are relative to number in: * study population; ** initial sample; † final sample.
  2. a One child was excluded as the walking ability was not recorded.
  3. b Born outwith specified dates of birth and over 6 months outside specified age range on interview date.