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Table 1 Included children by centre, impairment and socio-economic characteristics

From: Study protocol: SPARCLE – a multi-centre European study of the relationship of environment to participation and quality of life in children with cerebral palsy

Centre No. of children No. (%)of males Median age in years (IQR)
North England, UK 116 74 (64) 10.5 (2.5)
West Sweden 83 44 (53) 10.5 (2.1)
Northern Ireland, UK 102 63 (62) 10.3 (2.3)
South East France 67 38 (57) 10.6 (2.4)
South West Ireland 98 53 (54) 10.2 (2.3)
East Denmark 115 73 (63) 10.5 (2.9)
Central Italy 85 47 (55) 10.4 (2.5)
South West France 77 48 (62) 10.3 (3.1)
North West Germany 75 43 (57) 10.1 (2.8)
TOTAL 818   
Classification Category   No. (%) of children
Impairment
Cerebral palsy type
  Unilateral spastic   279 (34)
  Bilateral spastic   423 (52)
  Dyskinetic   86 (11)
  Ataxic   29 (4)
  (Missing)   1 (0.1)
IQ
  >70   385 (47)
  50–70   186 (23)
  <50   242 (30)
  (Missing)   5 (0.6)
Gross Motor Function Classification System [42]
  GMFCS 1   257 (31)
  GMFCS 2   164 (20)
  GMFCS 3   139 (17)
  GMFCS 4   113 (14)
  GMFCS 5   145 (18)
  (Missing)   0 (0)
Bimanual Fine Motor Function [43]
  BFMF 1   281 (34)
  BFMF 2   205 (25)
  BFMF 3   131 (16)
  BFMF 4   91 (11)
  BFMF 5   110 (13)
  (Missing)   0 (0)
Vision
  Blind or no useful vision   59 (7)
  Not above   759 (93)
  (Missing)   0 (0)
Hearing
  >70 decibels in better ear   799 (2)
  Not above   18 (98)
  (Missing)   1 (0.1)
Seizures
  No seizures, no medication   576 (70)
  No seizures, medication   74 (9)
  Seizures<1 a month   63 (8)
  Seizures>1 a month and <1 a week   47 (6)
  Seizures>1 a week   57 (7)
  (Missing)   1 (0.1)
Communication
  Normal   463 (57)
  Difficulty but uses speech   133 (16)
  Uses non speech for formal communication   98 (12)
  No formal communication   123 (15)
  (Missing)   1 (0.1)
Feeding
  No problems   583 (71)
  Feeds orally with difficulty   176 (22)
  Partial or complete non oral feeding   58 (7)
  (Missing)   1 (0.1)
Schooling
  Mainstream   316 (39)
  Split mainstream and unit   110 (13)
  Unit in mainstream   68 (8)
  Special school   310 (38)
  (Missing)   14 (1.7)
Socio-economic characteristics (algorithm if two parents/carers)
Best educational level
  High: Entry requirement for University or above   396 (48)
  Low: Below University requirement   415 (51)
  (Missing)   7 (1)
Income based on occupation and employment
  Full time professional/managerial   226 (28)
  Full time trade   402 (15)
  Part time   48 (35)
  Neither works   141 (24)
  (Missing)   1 (0.1)
Area of living
  Big city   120 (15)
  Suburbs of big city   123 (15)
  Town   286 (35)
  Village   195 (24)
  Countryside   91 (11)
  (Missing)   3 (0.4)