Centre | No. of children | No. (%)of males | Median age in years (IQR) |
---|---|---|---|
North England, UK | 116 | 74 (64) | 10.5 (2.5) |
West Sweden | 83 | 44 (53) | 10.5 (2.1) |
Northern Ireland, UK | 102 | 63 (62) | 10.3 (2.3) |
South East France | 67 | 38 (57) | 10.6 (2.4) |
South West Ireland | 98 | 53 (54) | 10.2 (2.3) |
East Denmark | 115 | 73 (63) | 10.5 (2.9) |
Central Italy | 85 | 47 (55) | 10.4 (2.5) |
South West France | 77 | 48 (62) | 10.3 (3.1) |
North West Germany | 75 | 43 (57) | 10.1 (2.8) |
TOTAL | 818 | ||
Classification | Category | No. (%) of children | |
Impairment | |||
Cerebral palsy type | |||
Unilateral spastic | 279 (34) | ||
Bilateral spastic | 423 (52) | ||
Dyskinetic | 86 (11) | ||
Ataxic | 29 (4) | ||
(Missing) | 1 (0.1) | ||
IQ | |||
>70 | 385 (47) | ||
50–70 | 186 (23) | ||
<50 | 242 (30) | ||
(Missing) | 5 (0.6) | ||
Gross Motor Function Classification System [42] | |||
GMFCS 1 | 257 (31) | ||
GMFCS 2 | 164 (20) | ||
GMFCS 3 | 139 (17) | ||
GMFCS 4 | 113 (14) | ||
GMFCS 5 | 145 (18) | ||
(Missing) | 0 (0) | ||
Bimanual Fine Motor Function [43] | |||
BFMF 1 | 281 (34) | ||
BFMF 2 | 205 (25) | ||
BFMF 3 | 131 (16) | ||
BFMF 4 | 91 (11) | ||
BFMF 5 | 110 (13) | ||
(Missing) | 0 (0) | ||
Vision | |||
Blind or no useful vision | 59 (7) | ||
Not above | 759 (93) | ||
(Missing) | 0 (0) | ||
Hearing | |||
>70 decibels in better ear | 799 (2) | ||
Not above | 18 (98) | ||
(Missing) | 1 (0.1) | ||
Seizures | |||
No seizures, no medication | 576 (70) | ||
No seizures, medication | 74 (9) | ||
Seizures<1 a month | 63 (8) | ||
Seizures>1 a month and <1 a week | 47 (6) | ||
Seizures>1 a week | 57 (7) | ||
(Missing) | 1 (0.1) | ||
Communication | |||
Normal | 463 (57) | ||
Difficulty but uses speech | 133 (16) | ||
Uses non speech for formal communication | 98 (12) | ||
No formal communication | 123 (15) | ||
(Missing) | 1 (0.1) | ||
Feeding | |||
No problems | 583 (71) | ||
Feeds orally with difficulty | 176 (22) | ||
Partial or complete non oral feeding | 58 (7) | ||
(Missing) | 1 (0.1) | ||
Schooling | |||
Mainstream | 316 (39) | ||
Split mainstream and unit | 110 (13) | ||
Unit in mainstream | 68 (8) | ||
Special school | 310 (38) | ||
(Missing) | 14 (1.7) | ||
Socio-economic characteristics (algorithm if two parents/carers) | |||
Best educational level | |||
High: Entry requirement for University or above | 396 (48) | ||
Low: Below University requirement | 415 (51) | ||
(Missing) | 7 (1) | ||
Income based on occupation and employment | |||
Full time professional/managerial | 226 (28) | ||
Full time trade | 402 (15) | ||
Part time | 48 (35) | ||
Neither works | 141 (24) | ||
(Missing) | 1 (0.1) | ||
Area of living | |||
Big city | 120 (15) | ||
Suburbs of big city | 123 (15) | ||
Town | 286 (35) | ||
Village | 195 (24) | ||
Countryside | 91 (11) | ||
(Missing) | 3 (0.4) |