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Table 1 Included children by centre, impairment and socio-economic characteristics

From: Study protocol: SPARCLE – a multi-centre European study of the relationship of environment to participation and quality of life in children with cerebral palsy

Centre

No. of children

No. (%)of males

Median age in years (IQR)

North England, UK

116

74 (64)

10.5 (2.5)

West Sweden

83

44 (53)

10.5 (2.1)

Northern Ireland, UK

102

63 (62)

10.3 (2.3)

South East France

67

38 (57)

10.6 (2.4)

South West Ireland

98

53 (54)

10.2 (2.3)

East Denmark

115

73 (63)

10.5 (2.9)

Central Italy

85

47 (55)

10.4 (2.5)

South West France

77

48 (62)

10.3 (3.1)

North West Germany

75

43 (57)

10.1 (2.8)

TOTAL

818

  

Classification

Category

 

No. (%) of children

Impairment

Cerebral palsy type

 

Unilateral spastic

 

279 (34)

 

Bilateral spastic

 

423 (52)

 

Dyskinetic

 

86 (11)

 

Ataxic

 

29 (4)

 

(Missing)

 

1 (0.1)

IQ

 

>70

 

385 (47)

 

50–70

 

186 (23)

 

<50

 

242 (30)

 

(Missing)

 

5 (0.6)

Gross Motor Function Classification System [42]

 

GMFCS 1

 

257 (31)

 

GMFCS 2

 

164 (20)

 

GMFCS 3

 

139 (17)

 

GMFCS 4

 

113 (14)

 

GMFCS 5

 

145 (18)

 

(Missing)

 

0 (0)

Bimanual Fine Motor Function [43]

 

BFMF 1

 

281 (34)

 

BFMF 2

 

205 (25)

 

BFMF 3

 

131 (16)

 

BFMF 4

 

91 (11)

 

BFMF 5

 

110 (13)

 

(Missing)

 

0 (0)

Vision

 

Blind or no useful vision

 

59 (7)

 

Not above

 

759 (93)

 

(Missing)

 

0 (0)

Hearing

 

>70 decibels in better ear

 

799 (2)

 

Not above

 

18 (98)

 

(Missing)

 

1 (0.1)

Seizures

 

No seizures, no medication

 

576 (70)

 

No seizures, medication

 

74 (9)

 

Seizures<1 a month

 

63 (8)

 

Seizures>1 a month and <1 a week

 

47 (6)

 

Seizures>1 a week

 

57 (7)

 

(Missing)

 

1 (0.1)

Communication

 

Normal

 

463 (57)

 

Difficulty but uses speech

 

133 (16)

 

Uses non speech for formal communication

 

98 (12)

 

No formal communication

 

123 (15)

 

(Missing)

 

1 (0.1)

Feeding

 

No problems

 

583 (71)

 

Feeds orally with difficulty

 

176 (22)

 

Partial or complete non oral feeding

 

58 (7)

 

(Missing)

 

1 (0.1)

Schooling

 

Mainstream

 

316 (39)

 

Split mainstream and unit

 

110 (13)

 

Unit in mainstream

 

68 (8)

 

Special school

 

310 (38)

 

(Missing)

 

14 (1.7)

Socio-economic characteristics (algorithm if two parents/carers)

Best educational level

 

High: Entry requirement for University or above

 

396 (48)

 

Low: Below University requirement

 

415 (51)

 

(Missing)

 

7 (1)

Income based on occupation and employment

 

Full time professional/managerial

 

226 (28)

 

Full time trade

 

402 (15)

 

Part time

 

48 (35)

 

Neither works

 

141 (24)

 

(Missing)

 

1 (0.1)

Area of living

 

Big city

 

120 (15)

 

Suburbs of big city

 

123 (15)

 

Town

 

286 (35)

 

Village

 

195 (24)

 

Countryside

 

91 (11)

 

(Missing)

 

3 (0.4)