Table 1 Demographics of families that completed a visit as of 12/31/2012 (N = 39)

Age of child in months at consent (Mean)

9.2 (range: 2-35 months)

Participation rate of families with children at age 7 months or less

20 (87%)

Participation rate of families of children at age 8-36 months

19 (58%)

Gender (male)*

21(54%)

Phenotype of child

  HbSS

19 (49%)

  HbSC

16 (41%)

  Other (Persistent fetal hemoglobin, beta-thalassemia)

4 (10%)

Medicaid health care coverage for child

32 (82%)

Marital status of parents: unmarried

34 (87%)

Average age of primary caregiver at enrollment in years

27 (range:15-49)

3 or more children under 5 years in household

8 (20.5%)

Primary caregiver education

  Less than high school graduation

8 (21%)

  High school diploma or GED

15 (38%)

  Some college

10 (26%)

  College graduate

6 (15%)