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Table 1 Characteristics of survey participants, including illness, sequelae and aftercare requirements

From: The health, social and educational needs of children who have survived meningitis and septicaemia: the parents’ perspective

  n %
Disease form   
Meningitis 76 39.2
Septicaemia 16 8.3
Both meningitis and septicaemia 102 52.6
Total 194  
Causative agent   
Meningococcal 68 35.1
Pneumococcal 49 25.3
Other bacterial 30 15.5
Viral 4 2.1
Fungal 6 3.1
Unknown 37 19.1
Total 194  
Severity of after-effects 1   
No after-effects 45 23.2
Moderate short term 14 7.2
Severe short term 31 16.0
Moderate permanent 43 22.2
Severe permanent 39 20.1
Moderate and severe permanent 1 0.5
Too soon to tell if permanent 6 3.1
Too soon to tell if any 15 7.7
Total 194  
Sequelae 2   
Behavioural, psychological or emotional 79 40.7
Fatigue (affecting day-to-day activities) 50 25.8
Recurrent severe headaches 33 17.0
Sensory (hearing loss/balance problems/visual loss or disturbance) 37 19.1
Motor or coordination problems 29 15.0
Epilepsy or other seizure disorder 17 8.8
Hydrocephalus 7 3.6
Brain damage 37 19.1
Scarring/tissue or muscle damage/long term wounds 31 16.0
Joint or limb pain/arthritis 35 18.0
Amputations or growth plate damage 14 7.2
Organ damage 7 3.6
Aftercare or support service needed 3,4   
Educational support 59 30.4
Physiotherapy 49 25.3
Speech and language therapy 38 19.6
Behavioural, psychological or emotional support 36 18.6
Occupational therapy 30 15.5
Hearing follow-up 26 13.4
Neurology 26 13.4
Child development centre services 24 12.4
Plastics 12 6.2
Orthopaedics 12 6.2
Prosthetics 6 3.1
Treatment for hydrocephalus (CSF chunt) 5 2.6
No aftercare or support needed 83 42.8
Only one aftercare or support service needed 28 14.4
>1 aftercare or support service 83 42.8
  1. 1Parents could select more than one category under severity of after-effects, here we have only counted the most severe category a parent selected.
  2. 2Parents could report more than one type of sequelae per child so the total here exceeds 194, but the percentage is based on the proportion of the sample (x/194) reporting that after-effect.
  3. 3This includes parents who chose the answer ‘My child will need this in future’.
  4. 4Parent could report more than one type of aftercare per child so the total here exceeds 194, but the percentage is based on the proportion of the sample (x/194) reporting that aftercare need.