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Table 2 Summary of the main sections of the baseline and follow up questionnaires

From: The Study of the Prevention of Anal Cancer (SPANC): design and methods of a three-year prospective cohort study

Section Examples of variables Measures and standardized scales
Socio-demographics Age, country of birth, ethnicity, relationship status, accommodation status, employment status, income Adapted from the Health in Men [15] and Positive Health [16] studies
Sexual practices Sexual identity Adapted from Health in Men and Positive Health studies [15, 16]
Age at first receptive anal intercourse: Gay community periodic surveys [17, 18]
Number of lifetime insertive and receptive anal partners (with and without a condom)
Lifetime number of female partners
Preferred position during anal sex (receptive or insertive)
Number of insertive and receptive anal partners (with and without a condom) in the previous six months
Frequency of fingering, fisting and insertion of toys and other objects in the previous six months
Gay social engagement Time spent with gay/homosexual friends Gay community periodic surveys [19]
Disclosure of sexuality to friends/family
Number of gay friends
Involvement with gay community
Health and lifestyle Smoking status 45 and Up study [20]
Alcohol and drug use
History of health problems (lifetime and in the last month)
History of depression and anxiety
Physical activity
General health
Section Examples of Variables Measures and Standardized Scales
Anal health History and frequency of anal douching Adapted from the Blokes with Anal Squamous Intraepithelial Lesions (BASIL) study [21]
History of STIs
Anal symptoms
HPV knowledge
Psychosocial evaluation Generic measure of health related quality of life SF36 v2 (Australian) [22]
Disease specific distress associated with diagnosis of SIL Cervical Dysplasia Distress and Screening questionnaires (modified) [23, 24]
Generic measures of distress Distress thermometer [24]
Worry about developing anal cancer Perception of risk of anal cancer Cancer worry [24]
Frequency of thinking about the tests Perceived risk of cancer Intrusive thoughts [25]
Psychosexual health
HIV-positive status specific Length of HIV infection Positive Health study [16]
Viral load
Most recent CD4-Tcell count
Nadir CD4-Tcell count
Type of antiretroviral medication
Length of time on antiretroviral medication
History of AIDS associated illness
Procedure related feedback Post procedure pain and bleeding  
Length of pain and bleeding
Discomfort associated with the procedures
Other Reason for joining study Adapted from Health In Men and positive Health studies [15, 16]
Source of recruitment