Instrument | Completed by | Captures | Domains | Measured at |
---|---|---|---|---|
ASD | Â | Â | Â | Â |
Social responsiveness scale [42] | Parent | Severity of ASD characteristics | Awareness | Baseline |
Cognition | ||||
Communication | ||||
Motivation | ||||
Mannerisms | ||||
Parent and young person | Emotional and behavioural problems | Emotional symptoms | Baseline | |
Conduct problems | ||||
Hyperactivity | ||||
Peer problems | ||||
Pro-social behaviour | ||||
Hospital anxiety and depression scale [45] | Young person | Severity of mental health problems | Anxiety Depression | All contacts |
Children’s global assessment scale [46] | Clinician | Functional impairment |  | Baseline |
Cerebral palsy | Â | Â | Â | Â |
Severity of impairments | Research assistant | Impairments | Type of cerebral palsy, gross motor function, upper limb function, intelligence, hearing, vision, communication, feeding, seizures | Baseline |
Unmet health needs | Parent and young person | Â | Â | All contacts |
Diabetes | Â | Â | Â | Â |
 | Research assistant | Diabetes control | Age at diagnosis | Baseline |
 | Research assistant |  | HbA1c averaged over last year, number of admissions for ketoacidosis over last year, result of annual eye examination | All contacts |