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Table 2 Description of self-management behaviors that were performed with either a consistent or episodic self-management pattern

From: The over time development of chronic illness self-management patterns: a longitudinal qualitative study

Type of Self-management behavior, number of participants describing behavior

Number of participants with a consistent pattern (diagnoses)

Number of participants with an episodic pattern (diagnoses)

Other

Description

Description

Long-term medication

   

N = 21

N = 17

N = 1

Two participants stopped taking medication after consulting with their physician. (rheum, MS)

 

(all diagnoses)

(IBD)

One participant stopped taking her medication by herself. (rheum)

 

Participants continued to take medication as prescribed.

One participant stopped with prescribed medication which he did not find effective. Started taking another medication and later took the first medication again.

 

Exercise

   

N = 21

N = 6

N = 13

 
 

(CRD, diab, IHD)

(diab, IHD, IBD, rheum, MS)

 
 

Walks were the most common type of exercise. Five participants exercised regularly before being diagnosed.

Participants described having the intention to exercise but maintained the behavior in periods.

Two participants decided to stop exercise. (CRD)

Healthy diet

   

N = 16

N = 11

N = 5

 

(all diagnoses)

(IBD, diab, IHD, CRD, rheum)

(diab, CRD, rheum, IBD)

 
 

Participants described being consistent with eating healthy.

Participants described eating healthy as problematic; especially regarding having regular meals and some wanted to know more about how different foods affected their health.

 

Smoking (and snuff) cessation

   

N = 3

N = 1

N = 1

 

(diabetes, ischemic heart disease, rheumatism)

(IHD)

(diab)

 
 

One participant stopped smoking at diagnosis, and described that she smoked one time during the study period.

One participant stopped using snuff, later started and prepared to stop again.

One participant described that she wanted to stop smoking but she did not try during the study period. (rheum)

Monitoring

   

N = 5

N = 1

N = 3

 
 

(diab)

(diab)

 
 

One participant continued to measure blood glucoses at least once a day.

At the beginning of the study participants measured blood glucoses several times a day, over time they limited their measuring. Participants still measured blood glucose levels several times a week, but they did not take series or before or after meal tests.

 
  1. Diagnoses: Inflammatory bowel disease (IBD), Multiple sclerosis (MS), Rheumatism (rheum), chronic renal disease (CRD), Diabetes (diab), ischemic heart disease (IHD).