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Table 2 Parent and adolescent self-report measurement tools and questions at each time point

From: Improving mental health of adolescents with Type 1 diabetes: protocol for a randomized controlled trial of the Nothing Ventured Nothing Gained online adolescent and parenting support intervention

   Time point
  Measurement tools/questions Baseline Post Follow-up
Demographics     
Adolescent characteristics Age, gender, postcode, family Characteristics, living arrangements, education, age at diagnosis, family history of diabetes, diabetes treatment regime, number of hospitalizations, general medical history (Other Acute or chronic health conditions) ✓   
Parent characteristics Age, gender, postcode, education, marital status, and employment    
Process evaluation     
Satisfaction with intervention^ 6 item assessment rating the intervention with 4 additional open-ended questions regarding most liked, least liked, suggestions on improvements, and other comments   ✓  
Primary outcome     
Adolescent     
Mental health Children's depression inventory -short form (CDI -S) [58] ✓ ✓ ✓
  Revised children's manifest anxiety Scale (RCMAS -S) [59] ✓ ✓ ✓
Secondary outcomes   ✓ ✓ ✓
Adolescent     
Behavioral Self-care inventory (SCI-R) [60] ✓ ✓ ✓
  Adolescent risk taking questionnaire (ASQ) [61] ✓ ✓ ✓
Psychosocial Diabetes quality of life survey for youths (DQoLY-S) [62] ✓ ✓ ✓
  Child health questionnaire: parent form 50 (CHQ-PF50) [63] ✓ ✓ ✓
  Stanford diabetes self-efficacy scale (SDSES) [64] ✓ ✓ ✓
  Benefit burden scale for children (BBSC) [65] ✓ ✓ ✓
  Adolescent resilience scale (ARS) [66] ✓ ✓ ✓
Metabolic HbA1c ✓   ✓
Parent     
Psychosocial Depression, anxiety & stress scale (DASS) [67] ✓ ✓ ✓
Fatigue assessment scale (FAS) [68] ✓ ✓ ✓
Parent sense of competence scale (PSoC) [69] ✓ ✓ ✓
Parent experience of child illness (PECI) [70] ✓ ✓ ✓
Family     
Communication Family problem solving communication index (FPSCI)* [71] ✓ ✓ ✓
Family management measure (FaMM) [72] ✓ ✓ ✓
Reduced conflict Diabetes family conflict scale (DFCS)* [73] ✓ ✓ ✓
Diabetes responsibility Diabetes family responsibility questionnaire (DFRQ)* [74] ✓ ✓ ✓
Mediators and moderators     
Perceived social support Adolescent satisfaction with support from parents, boyfriend/girlfriend, friends, teachers, employers, diabetes specialists ✓ ✓ ✓
Other activities Engagement in employment and extra-curricular activities. ✓   
  1. ^Administered to intervention group only.
  2. *Administered to parents and adolescents.
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BMC Public Health

ISSN: 1471-2458

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