|
Beliefs about Genetic Research
| |
|
1. Do you feel it is an important gift to society when a person takes part in medical research
| |
|
Yes
|
885 (83.02)
|
|
Maybe
|
156 (14.64)
|
|
No
|
25 (2.35)
|
|
2. How do you feel about genetic research
| |
|
Approve
|
875 (82.24)
|
|
Unsure
|
180 (16.91)
|
|
Disapprove
|
9 (0.86)
|
|
3. How would you feel about your genetic data being taken from you blood sample (your identity would not be known) and being used in medical research
| |
|
Approve
|
751 (70.79)
|
|
Unsure
|
253 (23.84)
|
| |
57 (5.37))
|
|
Personal privacy
| |
|
4.Would you be willing to join the BioGeneBank *
| |
|
Yes
|
556 (52.72)
|
|
Not sure
|
364 (34.36)
|
|
No
|
137 (12.94)
|
|
5. Reasons for refusal among those who answered not sure/no:
| |
|
Having an extra tube of blood drawn
|
66 (14.22)
|
|
Keeping information private and secure
|
332 (74.02)
|
|
Interfering with nature by taking part in genetic res.
|
49 (11.6)
|
|
6. Would you be willing to provide extra info: about your daily habits
| |
|
Yes
|
586 ( 56.95)
|
|
Most likely
|
275 (26.68)
|
|
May be
|
122 (11.83)
|
|
No
|
47 (4.54)
|
|
6a. about your family’s health
| |
|
Yes
|
682 (66.38)
|
|
Most likely
|
211 ( 20.5)
|
|
May be
|
89 (8.66)
|
|
No
|
46 (4.46)
|
|
Informed consent process
| |
|
7. Would you be comfortable if an “opt-out” approach was used in the BioGene Bank?
| |
|
Yes
|
461 (44.37)
|
|
Most likely
|
197 (18.96)
|
|
Maybe
|
166 (15.97)
|
|
No
|
215 (20.71)
|
|
8a. Uncomfortable enrolling in a research without having the study explained to#
| |
|
Yes
|
376 (61.94)
|
|
Probably
|
122 (20.11)
|
|
May be
|
64 (10.52)
|
|
No
|
46 (7.43)
|
|
8b. Concerned about being enrolled in a research without my knowledge#
| |
|
Yes
|
459 (74.77)
|
|
Most likely
|
83 (13.48)
|
|
May be
|
39 (6.44)
|
|
No
|
33 (5.33)
|
|
8c. Worried that other kinds of research would be done that I don’t approve of#
| |
|
Yes
|
384 (62.18)
|
|
Probably
|
89 (14.42)
|
|
May be
|
76 (12.45)
|
|
No
|
68 (10.96)
|
