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Table 1 Variables included in Diabetes MILES – The Netherlands (2011)

From: Diabetes MILES – The Netherlands: rationale, design and sample characteristics of a national survey examining the psychosocial aspects of living with diabetes in Dutch adults

Concept

Measure or variable *

Survey version

Demographics

Sex†‡, age†‡, marital status†‡, ethnicity†, education†‡, current employment†‡, shift work

All participants

Diabetes (clinical)

Diabetes type†‡, diabetes duration†‡, current treatment regimen†‡, current blood glucose level, most recent HbA1c†‡, HbA1c target level, number of severe hypos/hypers in past year, main diabetes health professional, membership of patient organisation†‡

All participants

General health

Height†‡, weight†‡, waist circumference†‡, hip circumference, presence of and medication for co-morbid conditions (including diabetes complications)†‡, number of hospitalisations in past year

All participants

Health consultations

Number of contacts with health professionals† in past year, cancelled appointments in past year, consultation behaviour (10 items)

All participants

Self-care behaviours

Diabetes Self-Care Inventory Revised (unpublished) plus Diabetes MILES – Australia smoking items†‡

All participants

Medication taking

ASK-12: Adherence Starts with Knowledge 12-item version [61]

All participants

Physical Activity

IPAQ: International Physical Activity Questionnaire (Short Form)[62], questions about sedentary behaviour adapted from Diabetes MILES - Australia

All participants

Eating behaviour

38-item food frequency questionnaire

All participants

Disordered eating

6 items†‡ plus 2 items with respect to insulin adapted from Diabetes MILES – Australia

All participants

Alcohol consumption

1 item: number of units per week

All participants

Diabetes-related distress

PAID: Problem Areas In Diabetes scale [63]†‡

All participants

Depression

PHQ-9: Patient Health Questionnaire 9-item scale [64]†‡

All participants

Anxiety

GAD-7: Generalized Anxiety Disorder 7-item scale [65]†‡

All participants

Type D personality

DS14: Type D Scale-14 [38]

All participants

Stressful life event(s)

1 item: stressful life event(s) in past year

All participants

Loneliness

1 item: loneliness in past year

All participants

Psychological insulin resistance

ITAS: Insulin Treatment Appraisal Scale [66]†‡

Module 1

Fear of hypoglycaemia

HFS-II: Hypoglycaemia Fear Survey-II [67]

Module 1

Diabetes-specific avoidance

6 items

Module 1

Eating style

DEBQ: Dutch Eating Behavior Questionnaire [68]

Module 1,3

Beliefs about diabetes

BIPQ: Brief Illness Perception Questionnaire (diabetes version) [69]†‡

Module 1,3

Anhedonia

4-item anhedonia subscale HADS: Hospital Anxiety and Depression Scale [70]

Module 2

Manic symptoms

MDQ-NL: Mood Disorder Questionnaire [71]

Module 2

Subtypes of depression

IDS-SR: Inventory of Depressive Symptomatology – self reported [72]

Module 2

Mindfulness

FFMQ-NL: Five Facet Mindfulness Questionnaire – Dutch version [73]

Module 3

Neuropathic pain

NeuroQoL: Neuropathy and foot ulcer-specific Quality of Life questionnaire (physical symptom measures only) [74]

Module 3,4

Positive mental health

MHC-SF: Mental Health Continuum - Short Form (emotional and psychological subscales only) [75]

Module 3

Sleep

PSQI: Pittsburgh Sleep Quality Index [76]

Module 4

Fatigue

FAS: Fatigue Assessment Scale [77]

Module 4

Daytime sleepiness

ESS: Epworth Sleepiness Scale [78]

Module 4

Social support

MSPSS: Multidimensional Scale of Perceived Social Support [79]

Module 5

Relationship adjustment

DAS: Dyadic Adjustment Scale [80]

Module 5

Sexual problems

SSFS: Short Sexual Functioning Scale – male and female version (Enzlin et al., unpublished)

Module 5

  1. * Unless otherwise specified, the question(s) was/were designed by the Diabetes MILES – The Netherlands research team.
  2. † Diabetes MILES Study core measures, to be included in all surveys of adults living with type 1 or type 2 diabetes.
  3. ‡ Measures present in the pooled Australian-Dutch data-set.