Concept | Measure or variable * | Survey version |
---|---|---|
Demographics | Sex†‡, age†‡, marital status†‡, ethnicity†, education†‡, current employment†‡, shift work | All participants |
Diabetes (clinical) | Diabetes type†‡, diabetes duration†‡, current treatment regimen†‡, current blood glucose level, most recent HbA1c†‡, HbA1c target level, number of severe hypos/hypers in past year, main diabetes health professional, membership of patient organisation†‡ | All participants |
General health | Height†‡, weight†‡, waist circumference†‡, hip circumference, presence of and medication for co-morbid conditions (including diabetes complications)†‡, number of hospitalisations in past year | All participants |
Health consultations | Number of contacts with health professionals† in past year, cancelled appointments in past year, consultation behaviour (10 items) | All participants |
Self-care behaviours | Diabetes Self-Care Inventory Revised (unpublished) plus Diabetes MILES – Australia smoking items†‡ | All participants |
Medication taking | ASK-12: Adherence Starts with Knowledge 12-item version [61] | All participants |
Physical Activity | IPAQ: International Physical Activity Questionnaire (Short Form)[62], questions about sedentary behaviour adapted from Diabetes MILES - Australia | All participants |
Eating behaviour | 38-item food frequency questionnaire | All participants |
Disordered eating | 6 items†‡ plus 2 items with respect to insulin adapted from Diabetes MILES – Australia | All participants |
Alcohol consumption | 1 item: number of units per week | All participants |
Diabetes-related distress | PAID: Problem Areas In Diabetes scale [63]†‡ | All participants |
Depression | PHQ-9: Patient Health Questionnaire 9-item scale [64]†‡ | All participants |
Anxiety | GAD-7: Generalized Anxiety Disorder 7-item scale [65]†‡ | All participants |
Type D personality | DS14: Type D Scale-14 [38] | All participants |
Stressful life event(s) | 1 item: stressful life event(s) in past year | All participants |
Loneliness | 1 item: loneliness in past year | All participants |
Psychological insulin resistance | ITAS: Insulin Treatment Appraisal Scale [66]†‡ | Module 1 |
Fear of hypoglycaemia | HFS-II: Hypoglycaemia Fear Survey-II [67] | Module 1 |
Diabetes-specific avoidance | 6 items | Module 1 |
Eating style | DEBQ: Dutch Eating Behavior Questionnaire [68] | Module 1,3 |
Beliefs about diabetes | BIPQ: Brief Illness Perception Questionnaire (diabetes version) [69]†‡ | Module 1,3 |
Anhedonia | 4-item anhedonia subscale HADS: Hospital Anxiety and Depression Scale [70] | Module 2 |
Manic symptoms | MDQ-NL: Mood Disorder Questionnaire [71] | Module 2 |
Subtypes of depression | IDS-SR: Inventory of Depressive Symptomatology – self reported [72] | Module 2 |
Mindfulness | FFMQ-NL: Five Facet Mindfulness Questionnaire – Dutch version [73] | Module 3 |
Neuropathic pain | NeuroQoL: Neuropathy and foot ulcer-specific Quality of Life questionnaire (physical symptom measures only) [74] | Module 3,4 |
Positive mental health | MHC-SF: Mental Health Continuum - Short Form (emotional and psychological subscales only) [75] | Module 3 |
Sleep | PSQI: Pittsburgh Sleep Quality Index [76] | Module 4 |
Fatigue | FAS: Fatigue Assessment Scale [77] | Module 4 |
Daytime sleepiness | ESS: Epworth Sleepiness Scale [78] | Module 4 |
Social support | MSPSS: Multidimensional Scale of Perceived Social Support [79] | Module 5 |
Relationship adjustment | DAS: Dyadic Adjustment Scale [80] | Module 5 |
Sexual problems | SSFS: Short Sexual Functioning Scale – male and female version (Enzlin et al., unpublished) | Module 5 |