Table 1 Concepts, measures and variables included in the Diabetes MILES--Australia 2011 Survey

Part 1: Your feelings In general

Subjective Wellbeing

PWI: Personal Wellbeing Index [30]

ALL

Emotional Wellbeing

WHO-5: World Health Organisation Well-being index [31]

ALL

Depression

PHQ-9: Patient Health Questionnaire [32]^

ALL

Anxiety

GAD-7: General Anxiety Disorder Questionnaire [33]^

ALL

Part 2: Your feelings about diabetes

Diabetes specific quality of life

QoL-Q Diabetes [27]

ALL

Diabetes-specific distress

DDS: Diabetes Distress Screening Scale [28]^#; PAID: Problem Areas In Diabetes scale [29]^#^

ALL

Diabetes-specific positive well-being

4-item subscale of the W-BQ28: Wellbeing Questionnaire [34]

ALL

Part 3: Your general health

General health

EQ5D-5L [35]; 3 items (general health in past 4 weeks; change in health in past year)*

ALL

Miscellaneous

7 items: other conditions/co-morbidities*^; sleep*; transplants*; dialysis*; weight loss surgery*

ALL

Part 4: Support from health professionals

Health consultations

29 items (main health care professionals, access, reliance, distance, consistency, continuity, distance/cost as an obstacle, timely appointment attendance)*^ inspired by the ALSHW Survey 2009

ALL

Healthcare and self-management

RSSM: Resources and Support for chronic illness Self-Management scale [36]

T1A, T2IA, T2A

Structured education

4 items* inspired by the IDF Diabetes Atlas 2009

T1A, T2IA, T2A

Empowerment

DES-SF: Diabetes Empowerment Scale Short Form [37]

ALL

Health literacy

HeLMS: Health Literacy Management Scale (seven of eight subscales included)

ALL

Part 5: Support from friends and family

Peer/family support

3 items* inspired by Tang et al, 2008 [38]; DFSC: Diabetes Family Support and Conflict [39], Diabetes support group involvement*

T1B, T2IB, T2B

Part 6: Your diabetes

Diabetes history

Age at diagnosis*^; diabetes type*^; current treatment regimen*^

ALL

Blood glucose monitoring and recording

6 items (satisfaction, monitoring, recording, action)* inspired by the DAFNE self-management questionnaire (in development)*

ALL

Self-care behaviours & attitudes

Diabetes Self-Care Inventory--Revised^{^} adapted to include smoking items* inspired by the Smoking and Health Survey 2010 (the Cancer Council Vic)[40]

ALL

Medication adherence

MARS: Medication Adherence Rating Scales [41] (Insulin and/or Medicine)

ALL

Blood glucose level and HbA1_C targets

4 items*^

T1A, T2IA, T2A

Hypoglycaemia awareness

The Gold Score [42]; 5 items from the HypoA-Q: Hypo Awareness Questionnaire [43]^

T1A

Hypoglycaemia treatment

1 item*

T1A

Fear of hypoglycaemia

2 items* inspired by the Hypoglycaemia Fear Scale [44]

T1A

Insulin restriction

Items inspired by Diabetes Australia-Vic's Type 1 Diabetes and Eating Disorders Online Survey 2008 Report*

T1B

Disordered eating

6 items* inspired by Type 1 Diabetes and Eating Disorders Online Survey 2008 report

T1B

Perceived behavioural control

15 items*

T2IB, T2B

Physical activity

IPAQ: International Physical Activity Questionnaire (Short Form) [45]; 5 items*

T2IB, T2B

Psychological insulin resistance

ITAS: Insulin Treatment Appraisal Scale [46]^{^}

T2IB, T2A

Part 7: Your thoughts and beliefs

Optimism

LOT-R: Life Orientation Test--Revised [47]

T1B, T2IB, T2B

Perceived self-efficacy

GSE: General Self-Efficacy Scale [48]

T1B, T2IB, T2B

Self-esteem

Rosenberg Self-Esteem Scale [49]

T1B, T2IB, T2B

Beliefs about illness

BIPQ: Brief Illness Perceptions Questionnaire (diabetes version) [50]^{^}

T1A, T2IA, T2A

Beliefs about medicines

BMQ: Beliefs about Medicines Questionnaire (medicine/insulin and general) [51]

T1A, T2IA, T2A

Part 8: About you

Demographics

25 items (e.g. sex, age, weight/height, education, occupation, disability)*^ inspired by the ALSWH 2009

ALL

Financial hardship

Economic Hardship Questionnaire [52]; 8 items*

T1B, T2IB, T2B

NDSS access

4 items* from previous NDSS surveys

ALL

Part 9: Have we missed anything?

Further comments

Free-text box

ALL

Part 10: Future Research

What research would you like to see?

Free-text box

ALL

Interest in future research

2 items*

ALL