Table 2 Quantification of informants who in their narratives supported the categories derived from the qualitative analysis.
Content areas with related categoriesa | Adolescents | Parents | ||
|---|---|---|---|---|
| Â | n | (%) | n | (%) |
Immediate reaction to the diagnosis | Â | Â | ||
Like a bolt of lightning | 68 | (75%) | 73 | (70%) |
Suddenly everything made sense | 5 | (5%) | 19 | (18%) |
Not reflected upon | 18 | (20%) | 13 | (12%) |
Looking back at the screening | Â | Â | ||
Feeling grateful for being made aware | 35 | (38%) | 76 | (72%) |
Ambivalent feelings about personal benefits | 9 | (10%) | 8 | (8%) |
Not reflected upon | 47 | (52%) | 21 | (20%) |
Attitudes towards future screening | Â | Â | ||
A right for everyone | 62 | (68%) | 72 | (68%) |
Only for sufferers | 8 | (9%) | 2 | (2%) |
Questioning the benefits | 9 | (10%) | 8 | (8%) |
Not reflected upon | 12 | (13%) | 23 | (22%) |
Total | 91 | (100%) | 105 | (100%) |