Table 3 Methods utilized to increase recruiting and follow up of the participants in the study.

1

Ensure all research assistants are adequately trained, fully informed and supervised closely

2

Liaise closely with clinic staff (administrative and clinical) and ensure they are fully informed about the recruiting process; set up a process to address any queries or concerns expediently

3

Recruit in privacy, ensuring the participants feel comfortable discussing the study and feel confidentiality is assured

4

Supply appropriate information about the study in plain folders

5

Employ research assistants who are independent of the clinical relationship to remain clear of the patient doctor relationship.

Methods to maximize retention:

1

Communicate regularly with participants, being particularly sensitive to maintain confidentiality

2

Prompt participants prior to sending follow up to confirm contact details

3

Maintain contact with participants using the same staff to engender familiarity and trust

4

Provide easy access to study staff by email or a free-call telephone number, including being available after hours (until 9 pm weeknights and on weekends)

5

Manage positive results efficiently, respectfully and at no cost to the participant

6

Provide small incentive payments and small gifts when appropriate.