Sociodemographic characteristics * | Â | n |
---|---|---|
Age at death | 1-64 years | 3 |
 | 65-79 years | 6 |
 | ≥ 80 years | 4 |
Sex | Male | 8 |
 | Female | 5 |
Educational level* | Elementary or lower | 2 |
 | Lower secondary | 6 |
 | Higher secondary or more | 4 |
Community of Belgium | Dutch community | 6 |
 | French community | 7 |
Fixed partner at time of death | Yes | 6 |
 | No | 7 |
Place of death | Home | 8 |
 | Care home | 5 |
Symptom burden in the last week of life (MSAS-GDI) †|  |  |
Physical symptoms | Lack of energy | 12 (6) |
 | Pain | 9 (5) |
 | Dry mouth | 8 (5) |
 | Difficulty breathing | 8 (4) |
 | Feeling drowsy | 10 (3) |
 | Constipation | 7 (2) |
 | Lack of appetite | 11 (1) |
Psychological symptoms | Feeling sad | 7 (5) |
 | Feeling nervous | 9 (4) |
 | Worrying | 6 (4) |
 | Feeling irritable | 5 (3) |
End-of-life care provision | Â | Â |
Patient-GP encounters | In last week of life (range) | 1-15 |
 | In last 3 months of life (range) | 6-42 |
Clinical specialist involved in care in last 3 months of life | None | 4 |
 | Sometimes or often | 9 |
Informal care over last 3 months of life | None | 1 |
 | Sometimes or often | 12 |
Treatment goal over last 3 months of life | Comfort/palliation | 5 |
 | Transition to comfort/palliation | 8 |
Consideration of curative or life-prolonging treatments by GP ‡ | Not possible anymore | 7 |
 | Still possible but not applied | 6 |
Reasons why not applied § |    Physician deemed chance for improvement too small | 4 |
 |    Physician wanted to end further suffering | 4 |
 |    Patient refused treatment (verbally or non-verbally) | 2 |
 |    Proxies wanted to end further suffering | 1 |
 |    Proxies were psychologically and physically exhausted | 1 |
Consideration of alternative palliative treatments by GP ‡ | Not possible anymore | 10 |
 | Still possible but not applied | 3 |
Reasons why not applied § |    Physician did not want to prolong patient's life | 1 |
 |    Physician wanted to end further suffering | 2 |
 |    Patient refused treatment | 1 |
Multidisciplinary palliative home care team involved in last three months of life | Yes | 4 |
 | No | 9 |